Salgado Christiana Leal, Lamy Zeni Carvalho, Nina Rachel Vilela de Abreu Haickel, de Melo Lívia Arruda, Lamy Filho Fernando, Nina Vinicus José da Silva
Service of Psychology at Federal University Hospital of Maranhão.
Rev Bras Cir Cardiovasc. 2011 Jan-Mar;26(1):36-42. doi: 10.1590/s0102-76382011000100009.
Congenital heart defects can often be corrected through surgery, providing for parents to expect a normal life, but the hospitalization experience often early, causes more pain, for which surgery is the worst moment.
The aim of this study was to analyze the experience of families of children undergoing cardiac surgery and to identify the coping resources used by the families.
A qualitative approach was the metodology of choice for this study, which took place with six semi-structured interviews and 100 hours of observation. Thematic analysis was used to understand the data.
The results were categorized into four themes: feelings and emotions facing the illness of the child; heart disease under the watchful mother, mother and child on the ICU and coping resources. The speech of mothers demonstrated the importance of the heart due to its symbolism that enhances their emotional fragility in the face of illness. Religiosity and a solid social network of support were contributing factors for the maintenance of the adaptive behaviors. The presence of mothers in all stages of the child's treatment contributed to minimizing the suffering generated by hospitalization.
The experience of families was characterized by ambivalent feelings such as fear of death, guilt and helplessness against the different stages of treatment. The anguish and anxiety prevailed in the face of unknown situations when information were required before therapeutic procedures, hospital routines and the actual life situation of the families.
先天性心脏缺陷通常可通过手术矫正，这让父母期望孩子能过上正常生活，但早期的住院经历往往会带来更多痛苦，对他们而言手术是最糟糕的时刻。
本研究旨在分析接受心脏手术患儿家庭的经历，并确定家庭所采用的应对资源。
本研究选择定性研究方法，进行了6次半结构化访谈和100小时的观察。采用主题分析法来理解数据。
结果分为四个主题：面对孩子疾病的感受和情绪；母亲悉心照料下的心脏病、重症监护病房中的母亲和孩子以及应对资源。母亲们的话语表明了心脏的重要性，因其象征意义增强了她们面对疾病时的情感脆弱性。宗教信仰和稳固的社会支持网络是维持适应行为的促成因素。母亲在孩子治疗的各个阶段的陪伴有助于将住院带来的痛苦降至最低。
家庭的经历具有矛盾情感的特征，如对死亡的恐惧、内疚以及在治疗不同阶段的无助感。当在治疗程序、医院常规和家庭实际生活状况之前需要信息时，面对未知情况时痛苦和焦虑占了上风。
