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一项小规模、定性的焦点小组研究,旨在调查威尔士正在接受放射治疗的青少年癌症患者的心理社会支持需求。

A small scale, qualitative focus group to investigate the psychosocial support needs of teenage young adult cancer patients undergoing radiotherapy in Wales.

机构信息

Radiotherapy Department, Singleton Hospital, Swansea SA2 8QA, UK.

出版信息

Eur J Oncol Nurs. 2012 Sep;16(4):375-9. doi: 10.1016/j.ejon.2011.08.002. Epub 2011 Sep 16.

DOI:10.1016/j.ejon.2011.08.002
PMID:21925950
Abstract

PURPOSE

The purpose of this study was to evaluate the psychosocial support needs of teenage young adult cancer patients undergoing radiotherapy in Wales.

METHOD

A focus group interview was utilised to encourage dialogue and collect rich data. Transcripts were analysed through open coding and content analysis. Emergent themes in terms of psychosocial tensions were identified and categorised as external stressors and intrinsic anxieties.

FINDINGS

All participants indicated a desire to maintain their identity as individuals and resume as normal a life as possible throughout the treatment process and beyond. Peer support was deemed as vital to achieving this goal. Participants demonstrated a distinct sense of unity and group cohesion throughout the session with suggestions that they considered themselves to be very different from what they thought of as 'usual cancer patients'. A range of information was offered prior to radiotherapy however there was variation in the efficacy of this provision between centres. At variance with literature, issues related to body image were not overtly demonstrated as significant. Support services provided by external organisations were not being signposted.

CONCLUSION

Psychosocial support is vital to the psychological recovery and wellbeing of young adult cancer patients. Findings suggest that issues related to peer support and age appropriate services and information are not being addressed within current service provision. Key staff within radiotherapy should be identified to ensure that the specific needs of this distinct patient group are met.

摘要

目的

本研究旨在评估威尔士青少年癌症患者在接受放射治疗时的心理社会支持需求。

方法

采用焦点小组访谈的方式,鼓励对话,收集丰富的数据。通过开放编码和内容分析对转录本进行分析。根据心理社会紧张的出现主题,将其分为外部压力源和内在焦虑。

结果

所有参与者都表示希望在治疗过程中和治疗结束后保持自己作为个体的身份,并尽可能恢复正常的生活。同伴支持被认为是实现这一目标的关键。参与者在整个会议中表现出明显的团结感和群体凝聚力,他们认为自己与所谓的“常规癌症患者”非常不同。在放射治疗前提供了一系列信息,但各中心之间提供信息的效果存在差异。与文献不同,与身体形象相关的问题并没有明显表现为重要问题。外部组织提供的支持服务没有被转介。

结论

心理社会支持对青少年癌症患者的心理康复和健康至关重要。研究结果表明,目前的服务提供中没有解决同伴支持以及适合年龄的服务和信息相关问题。应确定放射治疗中的关键人员,以确保满足这一特定患者群体的特殊需求。

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