Section of Mental Health and Ageing, Health Service and Population Research Department, Institute of Psychiatry, King's College London UK.
Br J Psychiatry. 2011 Nov;199(5):417-22. doi: 10.1192/bjp.bp.111.093989. Epub 2011 Sep 22.
People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact.
To define good end-of-life care for people with dementia and identify how it can be delivered across care settings in the UK.
In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method.
The data highlighted the challenge and imperative of 'dementia-proofing' end-of-life care for people with dementia. This requires using dementia expertise to meet physical care needs, going beyond task-focused care and prioritising planning and communication with families.
The quality of end-of-life care exists on a continuum across care settings. Together, the data reveal key elements of good end-of-life care and that staff education, supervision and specialist input can enable its provision.
痴呆症患者的临终关怀质量往往不如认知正常的患者。
为痴呆症患者定义良好的临终关怀，并确定如何在英国的各种护理环境中提供这种关怀。
对 27 名丧亲的家庭护理者和 23 名从社区、护理院、综合医院和持续护理单位招募的护理专业人员进行深入访谈。使用恒比法对数据进行分析。
数据突出了为痴呆症患者实现临终关怀“痴呆症-proofing”的挑战和必要性。这需要利用痴呆症专业知识来满足身体护理需求，超越任务型护理，优先与家庭进行规划和沟通。
临终关怀质量在各种护理环境中存在连续性。这些数据共同揭示了良好的临终关怀的关键要素，并且可以通过员工教育、监督和专业投入来提供这种关怀。
