McIlhenny Carol V, Guzic Brenda L, Knee Dawna R, Wendekier Camille M, Demuth Barbara R, Roberts Jay B
Saint Francis University, Loretto, PA, USA.
Rural Remote Health. 2011;11(4):1798. Epub 2011 Oct 11.
The prevalence of chronic disease in the US population is increasing. Projections indicate that half the US population will live with at least one chronic disease by the year 2030. Statistics indicate that chronic illnesses account for 70% of all deaths. Developing healthy self-management behaviors can lower the risk of developing chronic disease and also minimize the magnitude of subsequent morbidity and disability. Individuals need access to reliable information in order to learn successful self-management skills. Delivering healthcare information in rural areas is difficult. Geography, distance, inclement weather and/or the lack of financial resources are barriers that can prevent individuals from accessing health care and health education. Likewise, rural health clinics often lack the financial resources to provide the most current patient education materials. However, the internet allows remote and immediate access to this type of information if individuals know how and where to search for it. An internet portal, My Health Education & Resources Online (MyHERO) was created to facilitate locating current, non-commercial, reliable, evidence-based health information. The authors sought to assess the impact of a publically accessible internet information portal on diabetes knowledge, quality of life (QOL) measures, and self-management behaviors in a US rural area.
Participants (n=48) with type 2 diabetes in one clinic received regularly scheduled, one-on-one individualized diabetes-related health education and hands-on instructions on how to use an internet portal from a nurse educator. Each health clinic was supplied with a laptop computer for participants to use if they lacked internet access. Control participants (n=50) in a second clinic received a pamphlet describing how to access the portal. All participants completed baseline and end-of-study surveys. Disease knowledge was measured with the BASICS test developed by the International Diabetes Center. Problem Areas In Diabetes (PAID), developed by the Joslin Diabetes Center, was utilized to measure diabetes QOL. All participants completed a behavior modification survey at the conclusion of the study. Intervention participants were asked to complete a satisfaction survey at the conclusion of the study. Demographic and relevant laboratory values (eg serum glucose, HbA1c, lipids) were collected via chart review at baseline, 3, and 6 months.
Demographic and baseline scores were similar between groups. At 6 months, the intervention group showed significant increases in disease knowledge and self-blood glucose monitoring behavior. There were no differences in QOL between the groups at 6 months. Participants in the intervention group were highly satisfied with the nurse educator, but not with the internet as a resource.
Disease knowledge and self-blood glucose monitoring improved with one-on-one education. High attrition and a short study period were limitations of this study. The researchers speculate that the age of the participants and low internet penetration affected satisfaction scores. Future recommendations include a longer data collection period, more widespread publically accessible internet kiosks (grocery stores, malls, churches etc), other chronic disease states, and younger participants.
美国人群中慢性病的患病率正在上升。预测表明,到2030年,美国将有一半人口患有至少一种慢性病。统计数据显示,慢性病占所有死亡人数的70%。培养健康的自我管理行为可以降低患慢性病的风险,并将随后发病和残疾的程度降至最低。个人需要获取可靠信息才能学习成功的自我管理技能。在农村地区提供医疗保健信息很困难。地理、距离、恶劣天气和/或缺乏财政资源是阻碍个人获得医疗保健和健康教育的障碍。同样,农村健康诊所往往缺乏财政资源来提供最新的患者教育材料。然而,如果个人知道如何以及在哪里搜索,互联网允许远程即时获取此类信息。创建了一个互联网门户网站“我的健康教育与在线资源”(MyHERO),以方便查找当前、非商业、可靠、基于证据的健康信息。作者试图评估一个公众可访问的互联网信息门户网站对美国农村地区糖尿病知识、生活质量(QOL)指标和自我管理行为的影响。
一家诊所的48名2型糖尿病参与者接受了定期的一对一个性化糖尿病相关健康教育,并由一名护士教育工作者提供如何使用互联网门户网站的实践指导。如果参与者没有互联网接入,每个健康诊所都配备了一台笔记本电脑供他们使用。第二家诊所的50名对照参与者收到了一份描述如何访问该门户网站的宣传册。所有参与者都完成了基线调查和研究结束时的调查。疾病知识通过国际糖尿病中心开发的BASICS测试进行测量。由乔斯林糖尿病中心开发的糖尿病问题领域(PAID)用于测量糖尿病生活质量。所有参与者在研究结束时都完成了行为改变调查。干预组参与者在研究结束时被要求完成一份满意度调查。通过在基线、3个月和6个月时查阅病历收集人口统计学和相关实验室值(如血糖、糖化血红蛋白、血脂)。
两组之间的人口统计学和基线分数相似。在6个月时,干预组的疾病知识和自我血糖监测行为有显著增加。6个月时两组之间的生活质量没有差异。干预组的参与者对护士教育工作者高度满意,但对作为资源的互联网不满意。
通过一对一教育,疾病知识和自我血糖监测得到改善。高损耗率和短研究期是本研究的局限性。研究人员推测,参与者的年龄和低互联网普及率影响了满意度得分。未来的建议包括更长的数据收集期、更广泛的公众可访问互联网信息亭(杂货店、商场、教堂等)、其他慢性病状态以及更年轻的参与者。