National Center for Biotechnology Information, National Library of Medicine, National Institutes of Health, 8600 Rockville Pike, Bethesda, Maryland 20894, USA.
Int J Technol Assess Health Care. 2011 Oct;27(4):348-56. doi: 10.1017/S0266462311000547.
The Institute for Quality and Efficiency in Health Care (IQWiG) was established in 2003 by the German parliament. Its legislative responsibilities are health technology assessment, mostly to support policy making and reimbursement decisions. It also has a mandate to serve patients' interests directly, by assessing and communicating evidence for the general public.
To develop a priority-setting framework based on the interests of patients and the general public.
A theoretical framework for priority setting from a patient/consumer perspective was developed. The process of development began with a poll to determine level of lay and health professional interest in the conclusions of 124 systematic reviews (194 responses). Data sources to identify patients' and consumers' information needs and interests were identified.
IQWiG's theoretical framework encompasses criteria for quality of evidence and interest, as well as being explicit about editorial considerations, including potential for harm. Dimensions of "patient interest" were identified, such as patients' concerns, information seeking, and use. Rather than being a single item capable of measurement by one means, the concept of "patients' interests" requires consideration of data and opinions from various sources.
The best evidence to communicate to patients/consumers is right, relevant and likely to be considered interesting and/or important to the people affected. What is likely to be interesting for the community generally is sufficient evidence for a concrete conclusion, in a common condition. More research is needed on characteristics of information that interest patients and consumers, methods of evaluating the effectiveness of priority setting, and methods to determine priorities for disinvestment.
德国议会于 2003 年成立了德国卫生保健质量与效率研究所（IQWiG）。其立法职责是进行卫生技术评估，主要是为了支持决策和报销决策。它还有一项任务，即为患者的利益直接服务，通过评估和向公众传播证据来实现。
制定一个基于患者和公众利益的优先排序框架。
从患者/消费者的角度开发了一个优先排序的理论框架。该开发过程始于一项民意调查，以确定普通民众和卫生专业人员对 124 项系统评价结论的兴趣程度（194 名受访者）。确定了识别患者和消费者信息需求和兴趣的数据源。
IQWiG 的理论框架包括证据和利益质量的标准，以及明确编辑考虑因素，包括潜在危害。确定了“患者利益”的维度，例如患者的关注、信息寻求和使用。“患者利益”的概念不是一个可以通过单一手段衡量的单一项目，而是需要考虑来自各种来源的数据和意见。
向患者/消费者传达的最佳证据是正确的、相关的，并且可能被认为是受影响人群感兴趣和/或重要的。对于一般社区来说，在常见情况下，有足够的证据就可以得出具体的结论。需要进一步研究患者和消费者感兴趣的信息特征、优先排序效果评估方法以及确定撤资优先级的方法。
