Wolf U, Barnes B, Bertz J, Haberland J, Laudi A, Stöcker M, Schönfeld I, Kraywinkel K, Kurth B-M
Zentrum für Krebsregisterdaten, Robert Koch-Institut, General-Pape-Str. 62-66, 12101, Berlin, Deutschland.
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2011 Nov;54(11):1229-34. doi: 10.1007/s00103-011-1361-7.
Cancer represents the second most common cause of death in Germany. The country's federal states operate regional population-based cancer registries that collect and analyze data on cancer patients. This provides an essential basis for describing the cancer burden in the German population. In order to obtain valid and reliable information on cancer incidence at the national level, the Robert Koch Institute (RKI) set up the Federal Cancer Surveillance Unit in 1983 as a central institution for evaluating this cancer registry data. In August 2009, when the Federal Cancer Registry Data Act (BKRG) came into force, the Center for Cancer Registry Data (ZfKD) at the RKI took over the work of the Cancer Surveillance Unit with a broader remit. In the future, it will also regularly publish findings on survival, prevalence, and tumor stage distribution. A newly established record linkage process will help identify multiple submissions from the federal states. Further innovations and new tasks of the ZfKD include expanding an interactive Internet platform and encouraging a more intensive use of cancer registry data for epidemiological research by providing datasets to external scientists. The range of information available to the interested public is also to be expanded.
癌症是德国第二大常见死因。该国各联邦州设有基于地区人口的癌症登记处,负责收集和分析癌症患者的数据。这为描述德国人口的癌症负担提供了重要依据。为了在国家层面获得关于癌症发病率的有效和可靠信息,罗伯特·科赫研究所(RKI)于1983年设立了联邦癌症监测部门,作为评估这些癌症登记数据的中央机构。2009年8月,《联邦癌症登记数据法》(BKRG)生效时,RKI的癌症登记数据中心(ZfKD)接管了癌症监测部门的工作,职责范围更广。未来,它还将定期公布有关生存率、患病率和肿瘤分期分布的调查结果。新建立的记录链接程序将有助于识别来自联邦州的重复提交信息。ZfKD的进一步创新和新任务包括扩展交互式互联网平台,以及通过向外部科学家提供数据集,鼓励更广泛地利用癌症登记数据进行流行病学研究。同时,也将扩大向感兴趣的公众提供的信息范围。