Tuck Inez, Johnson Susan Carey, Kuznetsova Maria I, McCrocklin Carolyn, Baxter Marian, Bennington Linda K
Virginia Commonwealth University, VA, USA.
J Holist Nurs. 2012 Jun;30(2):69-80. doi: 10.1177/0898010111418116. Epub 2011 Oct 24.
Cancer is a challenging disease to diagnose and treat, and oftentimes even with the best medical intervention, it spreads and is deemed incurable, requiring a shift from cure to end-of-life care. This study used a spirituality measure and the PATS© storytelling intervention developed by the principal investigator to better understand the experience of being diagnosed with cancer and being told no further curative treatments are warranted.
The purpose of this exploratory study was to implement a storytelling approach to explore the experience of living with terminal cancer. Second, the study documented the presence of spirituality and healing in the narratives.
The qualitative data were analyzed by narrative analysis developed by Riessman.
Seven synoptic stories were written and later sorted into healing categories. The narrative analysis yielded three themes. There were instances of religion and spirituality found in the transcribed stories. The participants' scores on the Spiritual Health Inventory indicated the presence of spirituality.
Storytelling allowed the seven study participants to share personal experiences and achieve a sense of connectedness and intimacy. The use of the PATS© intervention is a way to facilitate physical, emotional, and spiritual healing and provide holistic end-of-life care.
癌症是一种诊断和治疗都颇具挑战性的疾病，而且通常即便采用了最佳的医疗干预手段，它仍会扩散并被判定为无法治愈，这就需要从追求治愈转向临终关怀。本研究采用了一种精神性测量方法以及由首席研究员开发的PATS©叙事干预措施，以更好地了解被诊断患有癌症且被告知无需进一步进行治愈性治疗的经历。
这项探索性研究的目的一是采用叙事方法来探究晚期癌症患者的生活经历。二是记录这些叙事中精神性和治愈元素的存在情况。
采用里斯曼开发的叙事分析法对定性数据进行分析。
撰写了七个概要故事，随后将其归类为治愈类别。叙事分析得出了三个主题。在转录的故事中发现了宗教和精神性的实例。参与者在精神健康量表上的得分表明了精神性的存在。
叙事使七名研究参与者能够分享个人经历，并获得一种联系感和亲密感。使用PATS©干预措施是促进身体、情感和精神治愈以及提供整体临终关怀的一种方式。
