Department of Physical Medicine and Rehabilitation, Virginia Commonwealth University, Rehabilitation Psychology and Neuropsychology School of Medicine, Richmond, VA 23219, USA.
J Rehabil Med. 2011 Nov;43(11):983-6. doi: 10.2340/16501977-0883.
The goal of the present study was to assess the health-related quality of life of a group of family caregivers of individuals with traumatic brain injury from Guadalajara, Mexico.
Ninety family caregivers of individuals with traumatic brain injury and 83 healthy controls completed the Short-Form 36, a self-report health-related quality of life measure composed of 8 component areas: physical functioning, role-physical, bodily pain, general health, vitality, social functioning, mental health, and role-emotional. The samples were statistically similar with respect to age, gender, marital status, and education. However, caregivers had significantly lower household income than controls.
After controlling for income, results showed significantly lower scores for traumatic brain injury caregivers compared with healthy controls on 6 Short-Form 36 subscales: role-emotional, vitality, mental health, social functioning, bodily pain, and general health.
Caregivers of individuals with traumatic brain injury living in Guadalajara, Mexico report having poorer health-related quality of life across various domains including mental and general health. Future studies should be conducted to determine which specific factors (e.g. lack of services, physical strain of providing care) are responsible for reduced health-related quality of life in these areas. It is likely that resources, such as respite services, adult day-care, aides, outpatient rehabilitation, psycho-educational programs, and support groups would increase health-related quality of life for these individuals.
本研究旨在评估来自墨西哥瓜达拉哈拉的创伤性脑损伤患者家属的健康相关生活质量。
90 名创伤性脑损伤患者的家庭照顾者和 83 名健康对照者完成了简短形式 36 项，这是一种自我报告的健康相关生活质量衡量标准，由 8 个组成部分组成：身体功能、身体角色、身体疼痛、一般健康、活力、社会功能、心理健康和情绪角色。样本在年龄、性别、婚姻状况和教育程度方面具有统计学相似性。然而，照顾者的家庭收入明显低于对照组。
在控制收入后，结果显示创伤性脑损伤照顾者在 6 项简短形式 36 项子量表上的得分明显低于健康对照组：情绪角色、活力、心理健康、社会功能、身体疼痛和一般健康。
生活在墨西哥瓜达拉哈拉的创伤性脑损伤患者的照顾者在包括心理和一般健康在内的各个领域报告的健康相关生活质量较差。未来的研究应该确定哪些特定因素（例如缺乏服务、提供护理的身体压力）导致这些领域的健康相关生活质量下降。提供喘息服务、成人日托、助手、门诊康复、心理教育计划和支持小组等资源可能会提高这些人的健康相关生活质量。
