儿童和青少年安格曼综合征患者的睡眠：与父母睡眠和压力的关系。
Sleep in children and adolescents with Angelman syndrome: association with parent sleep and stress.
机构信息
Sleep Disorders Program, Department of Neurology, Vanderbilt University Medical Center, Nashville, TN 37232-2551, USA.
出版信息
J Intellect Disabil Res. 2012 Jun;56(6):600-8. doi: 10.1111/j.1365-2788.2011.01499.x. Epub 2011 Nov 2.
BACKGROUND
Sleep concerns are common in children with Angelman syndrome, with 20-80% of individuals having a decreased sleep need and/or abnormal sleep-wake cycles. The impact of these sleep behaviours on parental sleep and stress is not known.
METHOD
Through the use of standardised questionnaires, wrist actigraphy and polysomnography, we defined the sleep behaviours of 15 children/adolescents with Angelman syndrome and the association of the child/adolescents sleep behaviours on parental sleep behaviours and parental stress.
RESULTS
Both children/adolescents and their parents exhibited over 1 h of wake time after sleep onset and fragmented sleep. Prolonged sleep latency in the child was associated with parent insomnia and daytime sleepiness. Additionally, variability in child total sleep time was associated with parental stress.
CONCLUSIONS
Poor sleep in children/adolescents with Angelman syndrome was associated with poor parental sleep and higher parental stress. Further work is warranted to identify the underlying causes of the poor sleep, and to relate these findings to daytime functioning, behaviour and the family unit.
背景
睡眠问题在患有 Angelman 综合征的儿童中很常见，有 20-80%的个体存在睡眠需求减少和/或睡眠-觉醒周期异常。这些睡眠行为对父母睡眠和压力的影响尚不清楚。
方法
通过使用标准化问卷、腕动描记法和多导睡眠图，我们定义了 15 名 Angelman 综合征儿童/青少年的睡眠行为，以及儿童/青少年睡眠行为与父母睡眠行为和父母压力的关系。
结果
儿童/青少年及其父母在入睡后均有超过 1 小时的清醒时间，且睡眠碎片化。儿童的睡眠潜伏期延长与父母失眠和白天嗜睡有关。此外，儿童总睡眠时间的可变性与父母压力有关。
结论
Angelman 综合征儿童/青少年的睡眠质量差与父母睡眠质量差和压力大有关。进一步的工作需要确定睡眠质量差的根本原因，并将这些发现与白天的功能、行为和家庭单位联系起来。
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