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Qual Life Res. 2012 Oct;21(8):1305-14. doi: 10.1007/s11136-011-0054-x. Epub 2011 Nov 3.
While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported outcomes [PROs]) are rarely collected in routine clinical practice. The International Society for Quality of Life Research (ISOQOL) has developed a User's Guide for Implementing Patient-Reported Outcomes Assessment in Clinical Practice. This paper summarizes the key issues from the User's Guide.
Using the literature, an ISOQOL team outlined considerations for using PROs in clinical practice; options for designing the intervention; and strengths, weaknesses, and resource requirements associated with each option.
Implementing routine PRO assessment involves a number of methodological and practical decisions, including (1) identifying the goals for collecting PROs in clinical practice, (2) selecting the patients, setting, and timing of assessments, (3) determining which questionnaire(s) to use, (4) choosing a mode for administering and scoring the questionnaire, (5) designing processes for reporting results, (6) identifying aids to facilitate score interpretation, (7) developing strategies for responding to issues identified by the questionnaires, and (8) evaluating the impact of the PRO intervention on the practice.
Integrating PROs in clinical practice has the potential to enhance patient-centered care. The online version of the User's Guide will be updated periodically.
虽然临床护理通常旨在使患者“感觉更好”，但很少在常规临床实践中收集患者关于其功能和幸福感的报告（患者报告的结局[PROs]）。国际生活质量研究学会（ISOQOL）已制定了在临床实践中实施患者报告结局评估的用户指南。本文总结了用户指南中的关键问题。
利用文献，ISOQOL 小组概述了在临床实践中使用 PRO 的考虑因素；设计干预措施的选项；以及每种选择的优缺点和资源需求。
实施常规 PRO 评估涉及许多方法学和实际决策，包括（1）确定在临床实践中收集 PRO 的目标，（2）选择患者、评估的设置和时间，（3）确定要使用的问卷，（4）选择问卷的管理和评分模式，（5）设计报告结果的流程，（6）确定有助于解释分数的辅助工具，（7）制定应对问卷中出现的问题的策略，以及（8）评估 PRO 干预对实践的影响。
将 PRO 整合到临床实践中有可能增强以患者为中心的护理。用户指南的在线版本将定期更新。
