Marfeo Elizabeth, Rasch Elizabeth K, Coale Kathleen, Porcino Julia, Chan Leighton
Department of Community Health, Tufts University, Medford, MA, United States.
Rehabilitation Medicine Department, NIH Clinical Center, Bethesda, MD, United States.
Front Rehabil Sci. 2025 Aug 14;6:1657105. doi: 10.3389/fresc.2025.1657105. eCollection 2025.
This article explores the role of patient-reported outcome measures (PROMs) in disability evaluation, a measurement domain traditionally dominated by clinical performance-based assessments. While performance tests are valued for their perceived objectivity, PROMs have gained prominence in research for their efficiency, patient-centered orientation, and capacity to capture subjective experiences relevant to functional decline related to potentially disabling conditions. The manuscript underscores the importance of aligning measurement tools with the specific purpose of evaluation-whether clinical, policy-driven, or programmatic. Using the Work Disability Functional Assessment Battery (WD-FAB) as an illustrative case, it compares the strengths and limitations of PROMs and performance-based tools in evaluating mental and physical function in the context of disability assessment. PROMs such as the WD-FAB can systematically and efficiently generate scores that represent function across multiple domains of function (e.g., mood and emotion, mobility, cognition) and are particularly well-suited for detecting change over time in large-scale applications. In contrast, performance-based assessments, while useful in certain clinical scenarios, are often resource-intensive and may not accurately reflect real-world functioning. The paper argues that although PROMs should not replace performance measures entirely, they represent a valuable and often preferable alternative or complement in many disability evaluation contexts. Ultimately, the choice of assessment tool should consider the intended use, resource constraints, and the need for comprehensive, patient-centered data.
本文探讨了患者报告结局测量指标(PROMs)在残疾评估中的作用,残疾评估这一测量领域传统上由基于临床表现的评估主导。虽然性能测试因其被认为的客观性而受到重视,但PROMs因其效率、以患者为中心的导向以及捕捉与潜在致残状况相关的功能下降相关主观体验的能力,在研究中日益突出。该手稿强调了使测量工具与评估的特定目的(无论是临床、政策驱动还是项目相关)保持一致的重要性。以工作残疾功能评估量表(WD - FAB)为例,它比较了PROMs和基于性能的工具在残疾评估背景下评估心理和身体功能方面的优势和局限性。诸如WD - FAB之类的PROMs可以系统且高效地生成代表多个功能领域(如情绪和情感、 mobility、认知)功能的分数,并且特别适合在大规模应用中检测随时间的变化。相比之下,基于性能的评估虽然在某些临床场景中有用,但往往资源密集,可能无法准确反映实际功能。本文认为,虽然PROMs不应完全取代性能测量指标,但在许多残疾评估背景下,它们是一种有价值且通常更可取的替代或补充。最终,评估工具的选择应考虑预期用途、资源限制以及对全面、以患者为中心的数据的需求。 (注:原文中“mobility”未翻译完整,可能是特定医学术语,因信息有限无法准确翻译)