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“我不仅仅是一种疾病,我还有更多的身份”。风湿性疾病患者对以情绪为焦点的小组干预的体验。

"I am not only a disease, I am so much more". Patients with rheumatic diseases' experiences of an emotion-focused group intervention.

机构信息

National Resource Center for Rehabilitation in Rheumatology, Diakonhjemmet Hospital, Oslo, Norway.

出版信息

Patient Educ Couns. 2011 Dec;85(3):419-24. doi: 10.1016/j.pec.2010.12.032. Epub 2011 Feb 5.

Abstract

OBJECTIVE

To obtain understanding of how patients with rheumatic diseases experienced participation in an emotion-focused group intervention in terms of influences on their emotional well-being and coping behavior and the processes whereby these influences arose.

METHODS

The intervention, Vitality Training (VTP), was conducted in 10 group sessions over 4 months. Qualitative data were collected from 10 focus group interviews (n=69) two weeks after the intervention. Data were analyzed with a qualitative content analysis approach.

RESULTS

Five categories were identified from the analyses: (1) recognizing oneself as both ill and healthy, (2) recognizing own emotions, (3) awareness of own needs, (4) being part of a community and (5) being recognized as a credible patient.

CONCLUSION

The VTP addressed participants' awareness of emotional and bodily reactions in a process-oriented and supportive group. The program had enhanced participants' recognition of their disease-related emotions and helped them to more actively relate to their own needs.

PRACTICAL IMPLICATIONS

This study has highlighted how a process-oriented group intervention that combines topics related to life, rather than disease, and learning methods that enhance emotional awareness and adaptive emotional expression can enhance emotional well-being and coping behavior in patients with rheumatic diseases.

摘要

目的

了解风湿性疾病患者在参与以情绪为焦点的小组干预时,情绪健康和应对行为受到哪些影响,以及这些影响产生的过程。

方法

该干预措施,活力训练(Vitality Training,VTP),在 4 个月内进行了 10 次小组会议。干预结束两周后,通过 10 次焦点小组访谈(n=69)收集定性数据。采用定性内容分析方法进行数据分析。

结果

分析中确定了五个类别:(1)认识到自己既是病人又是健康人,(2)认识自己的情绪,(3)意识到自己的需求,(4)成为社区的一部分,(5)被视为可信的患者。

结论

VTP 以面向过程和支持性的小组形式解决了参与者对情绪和身体反应的认识。该方案增强了参与者对与疾病相关的情绪的认识,并帮助他们更积极地关注自己的需求。

实践意义

本研究强调了如何通过结合与生活而非疾病相关的主题以及增强情绪意识和适应性情绪表达的学习方法的面向过程的小组干预,来提高风湿性疾病患者的情绪健康和应对行为。

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