Cancer Survivorship Program, Princess Margaret Hospital, Department of Psychiatry, University of Toronto, Canada.
Gynecol Oncol. 2012 Mar;124(3):458-64. doi: 10.1016/j.ygyno.2011.10.037. Epub 2011 Nov 9.
To gain a better understanding of the experiences of endometrial cancer patients at the transition from acute cancer treatment to well follow up care.
Cross-sectional mixed methods (survey and focus groups) study to examine and describe endometrial cancer survivor's experience of the transition to survivorship including their knowledge of survivorship issues, feeling of preparedness, health related distress and perspectives on care delivery and end of treatment transitions.
Survey data (n=169) and focus group data (n=14) suggests that a large majority of endometrial cancer survivors are not provided with any formal transition planning or documentation and as a result feel ill-prepared for the post treatment phase of survivorship. The majority of women in this study reported that they were not aware of their risk for recurrence or how to monitor for this and they were not provided with clear information in this regard. They were also unsure of the health risks and long-term and late effects of cancer and how to find information about them and resources to manage them. A substantial minority (30-40%) of women continued to be frustrated and discouraged by their health problems. Few participants had been told about the resources and supports that are available to them and their families/friends or were not provided with any information about self-management tools or education that could be helpful for them in their recovery.
Both the quantitative and qualitative results in our study suggest that quality of care for endometrial cancer survivors must begin to shift from a purely disease-focused approach to a wellness-centered approach that provides coordinated, patient-centered, comprehensive care and more formalized transition care planning.
更好地了解子宫内膜癌患者从急性癌症治疗过渡到随访护理的体验。
采用横断面混合方法（调查和焦点小组）研究，以检查和描述子宫内膜癌幸存者向生存者过渡的体验，包括他们对生存问题的认识、准备感、与健康相关的痛苦以及对护理提供和治疗结束过渡的看法。
调查数据（n=169）和焦点小组数据（n=14）表明，绝大多数子宫内膜癌幸存者没有接受任何正式的过渡计划或文件，因此对治疗后生存阶段准备不足。本研究中的大多数女性报告说，她们不知道自己的复发风险，也不知道如何监测这种风险，也没有得到这方面的明确信息。她们也不确定癌症的健康风险、长期和晚期影响，以及如何找到有关这些问题的信息和管理这些问题的资源。相当一部分（30-40%）女性仍然对她们的健康问题感到沮丧和失望。很少有参与者被告知他们可以获得哪些资源和支持，以及他们的家人/朋友，或者没有提供任何有关自我管理工具或教育的信息，这些信息可能对他们的康复有帮助。
我们的研究中的定量和定性结果都表明，子宫内膜癌幸存者的护理质量必须从纯粹的疾病为中心的方法转变为以健康为中心的方法，提供协调的、以患者为中心的、全面的护理和更正式的过渡护理计划。
