Division of Medical Dietetics and Health Sciences, School of Health and Rehabilitation Sciences, College of Medicine, The Ohio State University, Columbus, OH, USA.
Comprehensive Cancer Center, The Ohio State University, Columbus, OH, USA.
Cancer Control. 2020 Jan-Dec;27(1):1073274820917208. doi: 10.1177/1073274820917208.
The Commission on Cancer's standard 3.3 represents a paradigm shift in the care of cancer survivors, recommending that survivors receive a treatment summary and survivorship care plan (SCPs). A focus on older breast cancer survivors is needed, as they are the majority of the breast cancer population and their experiences and perspectives of SCPs is limited in the literature. This pilot study utilized a mixed methods approach (focus groups and self-report questionnaire data) to gather information on older (≥65 years) breast cancer survivors' perspectives of their SCPs, cancer survivorship, and communication with their health-care providers. The questionnaire was completed individually by the participants prior to the focus group and contained items on basic demographics and their health status following cancer treatment. The focus groups indicated that only a minority of women actually developed a SCP. Those who developed a SCP in collaboration with their providers valued the personal care and attention received. However, some participants reported poor communication with their providers and within their health-care team, resulting in frustration and confusion. Participants' suggestions for ideal SCPs included better education and personalization, particularly in appropriate nutrition and exercise, and managing side effects and comorbidities. Lastly, the women believed that additional long-term care resources, such as health coaches, were important in improving their survivorship. These findings provide insight into enhancing the content, communication, and application of SCPs to improve the survivorship experience of older breast cancer survivors.
癌症委员会的标准 3.3 代表了癌症幸存者护理模式的转变，建议幸存者获得治疗总结和生存护理计划（SCP）。需要关注老年乳腺癌幸存者，因为他们是乳腺癌人群的大多数，他们对 SCP 的经验和观点在文献中有限。这项试点研究采用混合方法（焦点小组和自我报告问卷数据）来收集有关老年（≥65 岁）乳腺癌幸存者对 SCP、癌症生存和与医疗保健提供者沟通的看法的信息。参与者在参加焦点小组之前单独完成了问卷，问卷内容包括基本人口统计学信息和癌症治疗后的健康状况。焦点小组表示，实际上只有少数女性制定了 SCP。那些与提供者合作制定 SCP 的人重视获得的个人护理和关注。然而，一些参与者报告与提供者和医疗保健团队之间沟通不畅，导致他们感到沮丧和困惑。参与者对理想 SCP 的建议包括更好的教育和个性化，特别是在适当的营养和锻炼方面，以及管理副作用和合并症。最后，女性认为额外的长期护理资源，如健康教练，对于改善她们的生存状况非常重要。这些发现为改善老年乳腺癌幸存者的生存体验，提供了关于增强 SCP 的内容、沟通和应用的深入了解。
