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香港失语症人士的言语-语言病理学和社区服务的家属报告。

Family members' report on speech-language pathology and community services for persons with aphasia in Hong Kong.

机构信息

Department of Communication Sciences and Disorders, University of Central Florida, Orlando, FL, USA.

出版信息

Disabil Rehabil. 2011;33(25-26):2633-45. doi: 10.3109/09638288.2011.579220.

Abstract

PURPOSE

This study investigates (a) the provision of speech-language pathology (SLP) services and community resources in Hong Kong for persons with aphasia (PWA) and their families and (b) family members' perception of the service quality.

METHODS

A self-administered 42-item questionnaire was distributed in two community support groups. The questions included information on the demography data of the PWAs, details of the SLP services and family members' perception of PWAs' satisfaction with the hospital-based services and resources in community support groups.

RESULTS

Results from 37 completed questionnaires indicated most inpatient and outpatient SLP sessions were delivered weekly and monthly, respectively, in fewer than 30 min. The primary foci of these sessions were assessment and treatment of aphasia. While professional SLP services were unavailable in support groups, the activities attended most frequently by the PWAs and their families were communication groups and social gatherings, respectively. Overall satisfaction was highest with support groups, followed by hospital-based inpatient and outpatient services.

CONCLUSIONS

The results provide commentary on the existing practices of post-stroke aphasia management in Hong Kong, and will provide new insights into the clinical care of the PWAs and their families. Such knowledge can allow better planning of resource and manpower allocation for aphasia rehabilitation.

摘要

目的

本研究调查了(a)香港为失语症患者及其家属提供的言语病理学(SLP)服务和社区资源,以及(b)家属对服务质量的看法。

方法

在两个社区支持小组中发放了一份 42 项的自我管理问卷。问题包括失语症患者的人口统计学数据、SLP 服务的详细信息以及家属对患者对医院为基础的服务和社区支持小组资源的满意度的看法。

结果

37 份完整问卷的结果表明,大多数住院和门诊 SLP 治疗分别每周和每月进行一次,每次治疗时间少于 30 分钟。这些治疗的主要重点是评估和治疗失语症。虽然支持小组没有专业的 SLP 服务,但失语症患者及其家属最常参加的活动分别是交流小组和社交聚会。总体满意度最高的是支持小组,其次是医院的住院和门诊服务。

结论

研究结果对香港脑卒中后失语症管理的现有实践进行了评论,并为失语症患者及其家属的临床护理提供了新的见解。这些知识可以更好地规划失语症康复的资源和人力配置。

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