Ostgathe C, Lindena G, Heussen N, Knübben K, Elsner F, Radbruch L
Abteilung für Palliativmedizin, Universitätsklinikum Erlangen, Krankenhausstr. 12, 91054, Erlangen, Deutschland.
Schmerz. 2011 Dec;25(6):676-84. doi: 10.1007/s00482-011-1113-5.
The German Cancer Aid funded 12 regional projects which developed different models of palliative home care. The realization of the projects were concurrently monitored and evaluated.
The funded projects were asked to document all patients who were cared for beginning in January 2009 using HOPE (Hospice and palliative survey), MIDOS (Minimal documentation system for palliative patients) and the Barthel index. Documentation was mandatory at the beginning and the end of care as well as when patients changed settings, for example when patients were transferred from a palliative care unit to a palliative home care service. Additionally the projects were visited by an independent observer.
Overall the 12 projects documented 2,663 patients. Analysis revealed differences between the projects mainly concerning target groups and interventions.
The results of this evaluation can support the discussion about the development of palliative home care in Germany with particular focus on possible interrelations between structures, target groups and possible outcomes of care.
德国癌症援助组织资助了12个地区项目,这些项目开发了不同的姑息居家护理模式。同时对这些项目的实施情况进行了监测和评估。
要求受资助项目使用HOPE(临终关怀与姑息治疗调查)、MIDOS(姑息治疗患者最小记录系统)和巴氏指数记录自2009年1月起接受护理的所有患者。在护理开始和结束时以及患者更换护理场所时(例如从姑息治疗病房转至姑息居家护理服务机构时)都必须进行记录。此外,独立观察员对这些项目进行了走访。
12个项目总共记录了2663名患者。分析显示,各项目之间的差异主要体现在目标群体和干预措施方面。
本次评估结果有助于推动德国姑息居家护理发展的相关讨论,尤其关注结构、目标群体和护理可能结果之间的潜在相互关系。