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慢性病自我管理的整合。

The integration of chronic illness self-management.

机构信息

Mid Sweden University, Sundsvall, Sweden.

出版信息

Qual Health Res. 2012 Mar;22(3):332-45. doi: 10.1177/1049732311430497. Epub 2011 Dec 13.

Abstract

Self-management is crucial for people living with chronic diseases, but the actual process of integrating self-management has not been explored in depth. In this article, we investigate the integration of self-management into the lives of people with chronic illness. In this longitudinal study, we used an interpretive description approach. Twenty-one individuals were interviewed regularly during the first 3 years after they were diagnosed with a chronic condition. We found self-management integration to be an ongoing process that included four phases: seeking effective self-management strategies, considering costs and benefits, creating routines and plans of action, and negotiating self-management that fits one's life. The participants managed the phases according to their context, e.g., illness experience, life situation, personal beliefs, and social support. Health care providers should therefore facilitate self-management integration by providing support that is adjusted to the person's phase of self-management integration and life context.

摘要

自我管理对于慢性病患者至关重要,但自我管理的实际整合过程尚未得到深入探讨。本文研究了慢性病患者将自我管理融入生活的过程。在这项纵向研究中,我们采用了解释性描述方法。在被诊断患有慢性病后的头 3 年中,我们定期对 21 名患者进行了访谈。我们发现自我管理整合是一个持续的过程,包括四个阶段:寻找有效的自我管理策略、考虑成本和收益、制定常规和行动计划以及协商符合个人生活的自我管理。参与者根据自己的情况(如疾病经历、生活状况、个人信仰和社会支持)来管理这些阶段。因此,医疗保健提供者应该通过提供根据患者自我管理整合阶段和生活背景调整的支持来促进自我管理的整合。

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