National Institute for Stroke and Applied Neuroscience, School of Rehabilitation and Occupation Studies, Auckland University of Technology, Auckland, New Zealand.
Neuroepidemiology. 2012;38(1):18-29. doi: 10.1159/000334746. Epub 2011 Dec 17.
Drawing on the experience of conducting the Brain Injury Incidence and Outcomes New Zealand in the Community study, this article aims to identify the issues arising from the implementation of proposed guidelines for population-based studies of incidence and outcomes in traumatic brain injury (TBI).
All new cases of TBI (all ages and severities) were ascertained over a 1-year period, using overlapping prospective and retrospective sources of case ascertainment in New Zealand. All eligible TBI cases were invited to participate in a comprehensive assessment at baseline and at 1-month follow-up.
Our experience to date has revealed the feasibility of case ascertainment methods. Consultation with community health services and professionals resulted in feasible referral pathways to support the identification of TBI cases. 'Hot pursuit' methods of recruitment were essential to ensure complete case ascertainment for this population with few additional cases of TBI identified through cross-checks.
This review of proposed guidelines in relation to practical study methodology provides a framework for future comparable population-based epidemiological studies of TBI incidence and outcomes in developed countries.
借鉴新西兰社区颅脑损伤发生率和结局研究的经验,本文旨在明确在实施基于人群的创伤性脑损伤(TBI)发生率和结局研究建议指南时所产生的问题。
在新西兰,使用前瞻性和回顾性病例发现方法的重叠,在 1 年期间确定所有新的 TBI 病例(所有年龄和严重程度)。所有符合条件的 TBI 病例均被邀请在基线和 1 个月随访时参加全面评估。
迄今为止,我们的经验表明病例发现方法具有可行性。与社区卫生服务和专业人员的协商导致了可行的转诊途径,以支持 TBI 病例的识别。“主动追查”的招募方法对于确保该人群的完整病例发现至关重要,通过交叉核对还确定了少数额外的 TBI 病例。
本研究对建议的指南进行了实践研究方法的审查,为未来在发达国家进行可比的基于人群的 TBI 发生率和结局的流行病学研究提供了框架。