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本文引用的文献

1
Association of hospice agency profit status with patient diagnosis, location of care, and length of stay.临终关怀机构盈利状况与患者诊断、护理地点和住院时间的关联。
JAMA. 2011 Feb 2;305(5):472-9. doi: 10.1001/jama.2011.70.
2
'I am willing to take the risk': politics, policy and the translation of the hospice ideal.“我愿意承担风险”:政治、政策与临终关怀理想的转变
J Clin Nurs. 2009 Oct;18(19):2700-9. doi: 10.1111/j.1365-2702.2009.02890.x.
3
Netting the hospice butterfly: politics, policy, and translation of an ideal.捕捉临终关怀之蝶:政治、政策与一种理想的转化
Home Healthc Nurse. 2007 Oct;25(9):566-71. doi: 10.1097/01.NHH.0000296113.56567.fd.
4
Reweaving a tapestry of care: religion, nursing, and the meaning of hospice, 1945-1978.重新编织关怀的锦缎:宗教、护理与临终关怀的意义,1945 - 1978年
Nurs Hist Rev. 2007;15:113-45. doi: 10.1891/1062-8061.15.113.
5
Differences in Medicare expenditures during the last 3 years of life.生命最后三年医疗保险支出的差异。
J Gen Intern Med. 2004 Feb;19(2):127-35. doi: 10.1111/j.1525-1497.2004.30223.x.
6
Home hospice versus home health: cooperation, competition, and cooptation.居家临终关怀与居家健康护理:合作、竞争与吸纳
Nurs Hist Rev. 2004;12:25-46.
7
Hospice use among Medicare managed care and fee-for-service patients dying with cancer.医疗保险管理式医疗和按服务收费模式下癌症临终患者的临终关怀使用情况。
JAMA. 2003 May 7;289(17):2238-45. doi: 10.1001/jama.289.17.2238.
8
Comparing Medicare and private insurers: growth rates in spending over three decades.比较医疗保险和私人保险公司:三十年的支出增长率
Health Aff (Millwood). 2003 Mar-Apr;22(2):230-7. doi: 10.1377/hlthaff.22.2.230.
9
The implications of regional variations in Medicare spending. Part 1: the content, quality, and accessibility of care.医疗保险支出地区差异的影响。第1部分:医疗服务的内容、质量和可及性。
Ann Intern Med. 2003 Feb 18;138(4):273-87. doi: 10.7326/0003-4819-138-4-200302180-00006.
10
Age and gender differences in health care utilization and spending for medicare beneficiaries in their last years of life.医疗保险受益人的临终医疗服务利用和支出方面的年龄及性别差异。
J Palliat Med. 2002 Oct;5(5):705-12. doi: 10.1089/109662102320880525.

政策与临终关怀的重塑:姑息治疗未来可借鉴的历史经验

Policy and the Re-Formation of Hospice: Lessons from the Past for the Future of Palliative Care.

作者信息

Buck Joy

机构信息

School of Nursing & Department of Family Medicine, West Virginia University, Eastern Division, 2500 Foundation Way, Martinsburg, West Virginia, 25401.

出版信息

J Hosp Palliat Nurs. 2011 Nov;13(6):S35-S43. doi: 10.1097/NJH.0b013e3182331160.

DOI:10.1097/NJH.0b013e3182331160
PMID:22184500
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3241009/
Abstract

During the twentieth-century, dramatic changes in the manner and location of care for the dying resulted in the conception and birth of the modern American hospice movement. Idealistic nurses, clergy, and others concerned about the plight of terminally ill cancer patients launched hospice as a necessary health care reform. As new hospice programs opened across the country, the idealism of the early leaders gave way to more pragmatic issues such as program viability. As hospice was studied and integrated into the health care system, it came to be redefined by the politics of health policy and the health care industry. As a result, there is a disarticulation between the needs of seriously ill persons and their families and the health care that is available to them. Important lessons can be learned from the history of the Medicare hospice benefit to help guide current palliative care policy initiatives. While formalized reimbursement for hospice enhanced organizational sustainability, many critical issues remain.

摘要

在20世纪,临终关怀的方式和地点发生了巨大变化,导致了现代美国临终关怀运动的构想和诞生。理想主义的护士、神职人员以及其他关心晚期癌症患者困境的人发起了临终关怀运动,将其作为一项必要的医疗保健改革。随着全国各地新的临终关怀项目的开展,早期领导者的理想主义让位于诸如项目可行性等更务实的问题。随着临终关怀被研究并融入医疗保健系统,它开始由卫生政策政治和医疗保健行业重新定义。结果,重症患者及其家庭的需求与他们所能获得的医疗保健之间出现了脱节。可以从医疗保险临终关怀福利的历史中吸取重要教训,以帮助指导当前的姑息治疗政策举措。虽然临终关怀的正式报销提高了组织的可持续性,但许多关键问题仍然存在。