Edith Cowan University, School of Exercise, Biomedical and Health Sciences, Australia.
Disabil Rehabil. 2012;34(15):1306-10. doi: 10.3109/09638288.2011.641662. Epub 2011 Dec 26.
To measure activity, participation and QoL in children with CP and to determine how these differ from a comparable group of typically developing (TD) children.
A total of eleven males and eight females with CP ranging in age from 5 to 12 years (mean age 7 years 10 months, SD 1 year 10 months; GMFCS level I-II) and 19 age and sex matched TD peers were recruited. Activity was measured using Paediatric Activity Card Sort (PACS), 6-Minute Walk Test and Timed Up and Go Test (TUG). Participation was measured using the assessment of Life Habits (LIFE-H) and quality of life was measured using the Cerebral Palsy Quality of Life Questionnaire (CP-QoL).
TD children performed more activities of personal care than children with CP, as assessed via the PACS, t(40) = 3.266, p = 0.002. TD children participate in more life habits than children with CP across all the LIFE-H domains except that of relationships. Results from the CP-QoL indicate that TD children experience a greater QoL in the domains of functioning, t(40) = 2.824, p = 0.007, and participation and physical health, t(40) = 3.543, p = 0.001, than children with CP.
These findings encourage the development of therapeutic interventions that aim to reduce these imbalances at all levels of the International Classification of Functioning, Disability and Health.
测量脑瘫儿童的活动、参与和生活质量，并确定其与可比的正常发育（TD）儿童有何不同。
共招募了 11 名年龄在 5 至 12 岁（平均年龄 7 岁 10 个月，标准差 1 年 10 个月；GMFCS 水平 I-II）的脑瘫男性和 8 名女性，以及 19 名年龄和性别匹配的 TD 同龄人。活动通过小儿活动分类卡（PACS）、6 分钟步行试验和计时起立行走试验（TUG）进行测量。参与通过生活习惯评估（LIFE-H）进行测量，生活质量通过脑瘫生活质量问卷（CP-QoL）进行测量。
TD 儿童在个人护理活动方面的表现优于脑瘫儿童，这通过 PACS 评估得出，t(40)=3.266，p=0.002。TD 儿童在所有 LIFE-H 领域（关系领域除外）的生活习惯参与度都高于脑瘫儿童。CP-QoL 的结果表明，TD 儿童在功能、参与和身体健康方面的生活质量体验优于脑瘫儿童，t(40)=2.824，p=0.007，t(40)=3.543，p=0.001。
这些发现鼓励开发治疗干预措施，旨在减少国际功能、残疾和健康分类所有层面的这些不平衡。
