Chen Kuan-Lin, Tseng Mei-Hui, Shieh Jeng-Yi, Lu Lu, Huang Chien-Yu
School of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan; Department of Physical Medicine and Rehabilitation, National Cheng Kung University Hospital, Tainan, Taiwan.
School of Occupational Therapy, College of Medicine, National Taiwan University, Taipei, Taiwan; Department of Physical Medicine and Rehabilitation, National Taiwan University Hospital, Taipei, Taiwan.
Res Dev Disabil. 2014 Feb;35(2):520-8. doi: 10.1016/j.ridd.2013.12.002. Epub 2013 Dec 27.
This study investigated the determinants of quality of life (QOL) of children with cerebral palsy (CP) considering possible variables comprehensively from a biopsychosocial perspective by adopting the International Classification of Functioning, Disability and Health (ICF) and using a CP-specific QOL questionnaire. A total of 167 children with CP (mean age 9.06 years, SD 2.61 years) and their caregivers participated in this study. Children's QOL was measured by the Cerebral Palsy Quality of Life for Children (CP QOL-Child) - primary caregiver proxy-report form. The potential determinants of QOL were collected based on all ICF dimensions. Results of seven multiple regression models showed that the determinants of QOL in children with CP were multidimensional and biopsychosocial in nature, i.e., encompassing the domains of health condition, body functions and structures, and contextual factors of the ICF. Children's behavioral and emotional problems as well as caregiver's psychological and family-related factors were important determinants of QOL in children with CP. Knowledge of the determinants of QOL could serve as a guide in a holistic approach to evaluation and intervention targeted at these determinants to improve the QOL of children with CP.
本研究采用《国际功能、残疾和健康分类》（ICF），从生物心理社会角度全面考虑可能的变量，并使用特定于脑瘫的生活质量问卷，调查了脑瘫（CP）患儿生活质量（QOL）的决定因素。共有167名脑瘫患儿（平均年龄9.06岁，标准差2.61岁）及其照顾者参与了本研究。儿童的生活质量通过《儿童脑瘫生活质量量表》（CP QOL-Child）——主要照顾者代理报告表进行测量。基于ICF的所有维度收集生活质量的潜在决定因素。七个多元回归模型的结果表明脑瘫患儿生活质量的决定因素本质上是多维度的且具有生物心理社会性，即涵盖了ICF的健康状况、身体功能和结构以及背景因素等领域。儿童的行为和情绪问题以及照顾者的心理和家庭相关因素是脑瘫患儿生活质量的重要决定因素。了解生活质量的决定因素可为针对这些决定因素的全面评估和干预提供指导，以提高脑瘫患儿的生活质量。
