Department of Health and Society, Narvik University College, Narvik, Norway.
J Neurosci Nurs. 2012 Feb;44(1):E1-13. doi: 10.1097/JNN.0b013e31823ae4a1.
Stroke is a life-threatening and disabling illness known to have a significant impact on families. The purpose of this study was to illuminate the long-term experience of family life after stroke of stroke survivors and their spouses and children, particularly regarding marital and parent-child relationships. Thirty-seven narrative interviews were conducted with stroke survivors and their spouses and adult children who were minors at onset of the illness. A qualitative approach inspired by Gadamer's hermeneutic and van Manen's phenomenological understanding of lived experience was used. The analysis revealed four themes: the family as a lifebuoy, absent presence, broken foundations, and finding a new marital path. Lack of communication and altered roles and relationships endangered marital equilibrium and parent-child relationships after stroke. This study highlighted the need for professional family support as families were unprepared for the life changes that occurred. Nurses and other healthcare workers should examine family relationships and communication patterns and view the family as a unit composed of unique persons with different needs. Further research on the experiences of stroke survivors' children seems urgent.
中风是一种危及生命且使人丧失能力的疾病，众所周知，它会对家庭产生重大影响。本研究旨在阐明中风幸存者及其配偶和子女在中风后的长期家庭生活体验，特别是在婚姻和亲子关系方面。对 37 名中风幸存者及其在发病时未成年的配偶和成年子女进行了叙事访谈。研究采用了伽达默尔的解释学和范梅南的现象学对生活经验的理解启发的定性方法。分析揭示了四个主题：家庭是救生圈、缺席的存在、基础被打破和寻找新的婚姻道路。中风后，沟通不畅以及角色和关系的改变危及了婚姻平衡和亲子关系。本研究强调了需要专业的家庭支持，因为家庭对发生的生活变化毫无准备。护士和其他医护人员应检查家庭关系和沟通模式，并将家庭视为由具有不同需求的独特个体组成的单位。进一步研究中风幸存者子女的经历似乎迫在眉睫。
