• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

马来西亚白癜风患者的生活质量。

Quality of life among Malaysian patients with vitiligo.

机构信息

Department of Medicine, University of Malaya, Kuala Lumpur, Malaysia.

出版信息

Int J Dermatol. 2012 Feb;51(2):158-61. doi: 10.1111/j.1365-4632.2011.04932.x.

DOI:10.1111/j.1365-4632.2011.04932.x
PMID:22250623
Abstract

BACKGROUND

Vitiligo is a chronic disease and can have significant impairment on patients' quality of life (QoL). Studies have shown that limitations in QoL are similar in magnitude to patients with other chronic skin diseases like psoriasis. The objective of this study was to assess the quality of life (QoL) of patients with vitiligo attending the dermatology clinic of a tertiary hospital in Malaysia.

METHODS

All patients with a clinical diagnosis of vitiligo who were seen at our dermatology clinic and phototherapy daycare center from September 15 to November 20, 2009 were invited to participate.

RESULTS

A total of 102 patients with vitiligo were included in this survey (56.9% females, 43.1% males; mean age 43.6). The mean DLQI score ± SD was 6.40 ± 5.17. The highest mean DLQI score was seen in the patient group aged 30-59 years (mean score 7.05). Malays had significantly higher DLQI scores compared with Indians (P = 0.026).

CONCLUSION

Patients in our cohort showed a moderate limitation of QoL, comparable to that of other chronic skin diseases. Management should focus not only on medical treatment but also psychological aspects, hence better QoL and treatment outcomes.

摘要

背景

白癜风是一种慢性疾病,会对患者的生活质量(QoL)造成显著影响。研究表明,生活质量的受限程度与其他慢性皮肤病如银屑病患者相似。本研究旨在评估在马来西亚一家三级医院皮肤科诊所就诊的白癜风患者的生活质量(QoL)。

方法

我们邀请了 2009 年 9 月 15 日至 11 月 20 日期间在我们皮肤科诊所和光疗日间中心就诊的所有临床诊断为白癜风的患者参与。

结果

共有 102 名白癜风患者参与了本次调查(女性占 56.9%,男性占 43.1%;平均年龄 43.6 岁)。平均 DLQI 评分±SD 为 6.40±5.17。30-59 岁患者组的平均 DLQI 评分最高(平均评分 7.05)。马来人比印度人有更高的 DLQI 评分(P=0.026)。

结论

我们队列中的患者表现出中等程度的生活质量受限,与其他慢性皮肤病相当。治疗应不仅注重医疗治疗,还应注重心理方面,从而获得更好的生活质量和治疗效果。

相似文献

1
Quality of life among Malaysian patients with vitiligo.马来西亚白癜风患者的生活质量。
Int J Dermatol. 2012 Feb;51(2):158-61. doi: 10.1111/j.1365-4632.2011.04932.x.
2
Willingness-to-pay and quality of life in patients with vitiligo.白癜风患者的支付意愿和生活质量
Br J Dermatol. 2009 Jul;161(1):134-9. doi: 10.1111/j.1365-2133.2009.09091.x. Epub 2009 Mar 9.
3
Effect of vitiligo on self-reported health-related quality of life.白癜风对自我报告的健康相关生活质量的影响。
Br J Dermatol. 2005 Jun;152(6):1165-72. doi: 10.1111/j.1365-2133.2005.06456.x.
4
Assessment of quality of life in Saudi patients with vitiligo in a medical school in Qassim province, Saudi Arabia.沙特阿拉伯卡西姆省一所医学院对白癜风沙特患者的生活质量评估。
Saudi Med J. 2007 Sep;28(9):1414-7.
5
Quality of life of patients with vitiligo attending the Regional Dermatology Training Center in Northern Tanzania.坦桑尼亚北部地区皮肤病培训中心就诊的白癜风患者的生活质量。
Int J Dermatol. 2013 Feb;52(2):191-4. doi: 10.1111/j.1365-4632.2012.05600.x.
6
Quality of life and stigmatization profile in a cohort of vitiligo patients and effect of the use of camouflage.白癜风患者队列中的生活质量和污名化情况以及伪装疗法的效果
Dermatology. 2005;210(4):279-85. doi: 10.1159/000084751.
7
Objective vs. subjective factors in the psychological impact of vitiligo: the experience from a French referral centre.白癜风心理影响中的客观因素与主观因素:来自法国一家转诊中心的经验
Br J Dermatol. 2009 Jul;161(1):128-33. doi: 10.1111/j.1365-2133.2009.09077.x. Epub 2009 Mar 9.
8
Quality of life and cost of illness in patients with psoriasis in Malaysia: a multicenter study.马来西亚银屑病患者的生活质量和疾病经济负担:一项多中心研究。
Int J Dermatol. 2013 Mar;52(3):314-22. doi: 10.1111/j.1365-4632.2011.05340.x.
9
To what extent is quality of life impaired in vitiligo? A multicenter study on Italian patients using the dermatology life quality index.白癜风患者的生活质量受到了多大程度的损害?一项针对意大利患者使用皮肤病生活质量指数的多中心研究。
Dermatology. 2014;229(3):240-7. doi: 10.1159/000363407. Epub 2014 Oct 25.
10
Dermatology Life Quality Index score in vitiligo patients: a pilot study among young Italian males.白癜风患者的皮肤病生活质量指数评分:一项针对意大利年轻男性的初步研究。
G Ital Dermatol Venereol. 2012 Feb;147(1):83-90.

引用本文的文献

1
Assessment of dermatological life quality in patients with cutaneous diseases at Universitas Academic Hospital.乌得勒支大学学术医疗中心皮肤病患者皮肤病生活质量评估
J Coll Med S Afr. 2025 Mar 31;3(1):160. doi: 10.4102/jcmsa.v3i1.160. eCollection 2025.
2
Short-term (24 weeks) treatment efficacy and safety of ruxolitinib cream in participants with vitiligo: a systematic review and meta-analysis.短期(24 周)治疗白癜风患者鲁索替尼乳膏的疗效和安全性:系统评价和荟萃分析。
Syst Rev. 2024 Oct 2;13(1):250. doi: 10.1186/s13643-024-02653-7.
3
Impact of Acne Vulgaris and Vitiligo on Quality of Life and Self-Esteem in the Patient Population of Madinah, Saudi Arabia.
寻常痤疮和白癜风对沙特阿拉伯麦地那患者人群生活质量和自尊的影响。
Cureus. 2024 Jan 19;16(1):e52586. doi: 10.7759/cureus.52586. eCollection 2024 Jan.
4
Worsening Quality of Life in Young Adult, Highly Educated, and Married Female Patients with Vitiligo: A Hospital-Based Case Control Study in Taiwan.台湾地区基于医院的病例对照研究:白癜风对年轻、高学历、已婚女性患者生活质量的影响日益严重。
Int J Environ Res Public Health. 2022 May 31;19(11):6741. doi: 10.3390/ijerph19116741.
5
The humanistic burden of vitiligo: a systematic literature review of quality-of-life outcomes.白癜风的人文负担:生活质量结果的系统文献回顾。
J Eur Acad Dermatol Venereol. 2022 Sep;36(9):1507-1523. doi: 10.1111/jdv.18129. Epub 2022 May 11.
6
Relationship Between Depression and Quality of Life Among Vitiligo Patients: A Self-assessment Questionnaire-based Study.白癜风患者抑郁与生活质量的关系:一项基于自评问卷的研究。
Clin Cosmet Investig Dermatol. 2020 Aug 4;13:511-520. doi: 10.2147/CCID.S265349. eCollection 2020.
7
Quality of life of adult vitiligo patients using camouflage: A survey in a Chinese vitiligo community.成年白癜风患者使用伪装产品的生活质量:中国白癜风社区的一项调查。
PLoS One. 2019 Jan 24;14(1):e0210581. doi: 10.1371/journal.pone.0210581. eCollection 2019.
8
Quality of life in mild and severe alopecia areata patients.轻度和重度斑秃患者的生活质量。
Int J Womens Dermatol. 2017 Sep 4;4(2):91-94. doi: 10.1016/j.ijwd.2017.07.001. eCollection 2018 Jun.
9
Analysis of quality of life and influencing factors in 197 Chinese patients with port-wine stains.197例葡萄酒色斑中国患者的生活质量及影响因素分析
Medicine (Baltimore). 2017 Dec;96(51):e9446. doi: 10.1097/MD.0000000000009446.
10
Quality of life in patients with erythema nodosum leprosum in Kuala Lumpur, Malaysia.马来西亚吉隆坡麻风结节性红斑患者的生活质量
Indian Dermatol Online J. 2016 Jul-Aug;7(4):255-8. doi: 10.4103/2229-5178.185495.