1 IGM - Institut Gesundheitsökonomie und Medizinmanagement, Hochschule Neubrandenburg, Neubrandenburg, Germany 2 GEB mbH, Gesellschaft für Empirische Beratung (Empirical Consulting), Denzlingen, Germany.
Patient. 2010 Dec 1;3(4):285-94. doi: 10.2165/11584640-000000000-000009.
: Attention-deficit hyperactivity disorder (ADHD) is a complex neuropsychiatric disorder that affects children and young people, as well as adults. Since ADHD does not produce specific organic characteristics, behavior and preferences are crucial to diagnosis and treatment. Comprehensive therapy concepts should take full account of the needs of the patients.
: To document therapy attributes that are important from the adults' perspective and to analyze findings from two different valuation approaches used in the same survey.
: A self-administered survey measuring attitudes and preferences was conducted in Germany in 2009 (n = 329). Adult patients (aged ≥18 years) were recruited from all over Germany, with the help of patient advocacy organizations. Attitudes were measured and analyzed using a classic rating scale in 5-point Likert format. Discrete-choice experiment (DCE) scenarios were developed using a fractional factorial design and results were analyzed using random effects logit models.
: The aspect of highest importance for the respondents was that social function (job, studies, friendships) was not impaired (coefficient 2.115; standard error 0.111). The next most important in the view of the respondents was achievement of behavioral changes through treatment (coefficient 1.755; standard error 0.110). The 'drug intake' aspect was not important in the attitude component rating and not significant in the DCE.
: The primary goal of ADHD treatment is by no means the alleviation of core symptoms. Instead, therapy should help enable patients to set and achieve their own objectives. Treatment should enable patients to organize their social participation in everyday life.
注意缺陷多动障碍（ADHD）是一种复杂的神经精神疾病，影响儿童和青少年以及成年人。由于 ADHD 没有产生特定的器官特征，行为和偏好对诊断和治疗至关重要。综合治疗概念应充分考虑患者的需求。
记录从成人角度来看重要的治疗属性，并分析同一调查中使用的两种不同评估方法的结果。
2009 年在德国进行了一项自我管理的调查，测量态度和偏好（n=329）。成年患者（年龄≥18 岁）在患者倡导组织的帮助下从德国各地招募。使用经典的 5 点李克特格式评级量表测量和分析态度。使用分数阶设计开发离散选择实验（DCE）情景，并使用随机效应对数模型分析结果。
对受访者最重要的方面是社交功能（工作、学习、友谊）不受影响（系数 2.115；标准误差 0.111）。受访者认为下一个最重要的是通过治疗实现行为改变（系数 1.755；标准误差 0.110）。“药物摄入”方面在态度组成部分评分中并不重要，在 DCE 中也不显著。
ADHD 治疗的主要目标绝不是缓解核心症状。相反，治疗应该帮助患者设定和实现自己的目标。治疗应该使患者能够组织他们在日常生活中的社交参与。
