Academic Unit of Oral Health and Development, School of Clinical Dentistry, Claremont Crescent, Sheffield, UK.
Int J Paediatr Dent. 2012 Nov;22(6):442-50. doi: 10.1111/j.1365-263X.2011.01214.x. Epub 2012 Jan 31.
This qualitative study sought to explore children's perspectives on their participation in the cleft lip and palate care pathway.
Eight boys and nine girls (aged 8-17 years), with a range of cleft types and who were patients at a British dental hospital each took part in two child-centred interviews which incorporated participatory activities. An initial interview focused on children's general life stories, and these often encompassed a discussion about cleft lip and/or palate. A follow-up interview explored specific aspects of the condition and its related treatment.
Data revealed the varying roles that young people can play in decision-making, which can be described as active or passive. In addition, the dynamic degree of participation was highlighted with patients occupying different roles throughout the care pathway.
The research provides an insight into treatment decisions, and how young people, their families, and clinicians interact to arrive at these. Findings provide further evidence to support the important contribution young patients can make in their own treatment choices.
本定性研究旨在探讨儿童对参与唇腭裂护理途径的看法。
8 名男孩和 9 名女孩（年龄 8-17 岁），具有不同的唇腭裂类型，均为英国一家牙科医院的患者，他们每人参加了两次以儿童为中心的访谈，其中包括参与式活动。初次访谈侧重于儿童的一般生活故事，这些故事通常包括对唇腭裂的讨论。后续访谈探讨了该疾病及其相关治疗的具体方面。
数据揭示了年轻人在决策中可以扮演的不同角色，可以描述为主动或被动。此外，还强调了参与的动态程度，患者在整个护理途径中占据不同的角色。
该研究深入了解了治疗决策，以及年轻人、他们的家人和临床医生如何相互作用来做出这些决策。研究结果进一步证明，年轻患者可以对自己的治疗选择做出重要贡献。
