Stock Nicola Marie, Rumsey Nichola
Cleft Palate Craniofac J. 2015 Jan;52(1):31-43. doi: 10.1597/13-035.
To explore the impact of having a child born with a cleft lip and/or palate from the father's perspective.
Individual qualitative telephone interviews.
A total of 15 fathers of children born with cleft lip and/or palate were recruited throughout the U.K. via advertisements.
Supported by a number of subthemes, four overarching themes were identified: variations in care and support; appraisals of the cleft; perceptions of treatment; and looking back and moving forward.
Fathers reported experiences comparable to those previously reported by mothers, in addition to a number of further support and information needs. PARTICIPANTS played a key role in supporting their families through the treatment process, yet fathers are underrepresented in the research literature. Recommendations are made for the adequate inclusion of fathers in future research and in relation to methods of support for fathers through their children's diagnosis and treatment.
从父亲的角度探讨孩子患有唇腭裂所带来的影响。
个人定性电话访谈。
通过广告在英国各地招募了15位孩子患有唇腭裂的父亲。
在若干子主题的支持下，确定了四个总体主题：护理和支持的差异；对唇腭裂的评估；对治疗的看法；以及回顾与展望。
父亲们报告的经历与之前母亲们报告的经历类似，此外还有一些进一步的支持和信息需求。参与者在整个治疗过程中对家庭的支持起到了关键作用，但研究文献中父亲的代表性不足。针对未来研究中充分纳入父亲以及通过孩子的诊断和治疗为父亲提供支持的方法提出了建议。
