Rioux Jean-Philippe, Narayanan Ranjit, Chan Christopher T
Division of Nephrology, Department of Medicine, University Health Network, Toronto, Ontario, Canada.
Hemodial Int. 2012 Apr;16(2):214-9. doi: 10.1111/j.1542-4758.2011.00657.x.
Recent studies have suggested improvements in quality of life (QOL) in patients on quotidian dialysis compared with conventional hemodialysis. Few studies have focused on the burden and QOL in caregivers of patients with end-stage renal disease (ESRD) on nocturnal home hemodialysis (NHD). We aim to assess the caregivers' burden, QOL, and depressive symptoms and to compare these parameters with their patients' counterparts. Cross-sectional surveys were sent to 61 prevalent NHD patients and their caregivers. Surveys assessed demographics, general self-perceived health using the 12-Item Short Form Health Survey (SF-12) and the presence of depression using the Beck Depression Inventory. Subjective burden on caregivers was assessed by the Caregiver Burden scale and was compared with perceived burden by the patients. Thirty-six patients and 31 caregivers completed the survey. The majority of caregivers were female (66%), spouse (81%) with no comorbid illness (72%). Their mean age was 51 ± 11 years. Patients were mostly male (64%) with a median ESRD vintage of 60 months (interquartile range [IQR], 18-136 months) and a mean age of 52 ± 10 years. Compared to caregivers, patients had lower perceived physical health score but had similar mental health score. Depression criteria were present in 47% of patients and 25% of caregivers. Total global burden perceived by either caregivers or patients is relatively low. Although there is a relatively low global burden perceived by caregivers and patients undergoing NHD, a significant proportion of both groups fulfilled criteria for depression. Further innovative approaches are needed to support caregivers and patients performing NHD to reduce the intrusion of caring for a chronic illness and the risk of developing depression.
最近的研究表明，与传统血液透析相比，每日透析患者的生活质量（QOL）有所改善。很少有研究关注夜间家庭血液透析（NHD）的终末期肾病（ESRD）患者的照料者的负担和生活质量。我们旨在评估照料者的负担、生活质量和抑郁症状，并将这些参数与其患者的相应参数进行比较。对61例接受NHD治疗的患者及其照料者进行了横断面调查。调查评估了人口统计学特征、使用12项简短健康调查（SF - 12）评估一般自我感知健康状况以及使用贝克抑郁量表评估抑郁情况。通过照料者负担量表评估照料者的主观负担，并与患者感知的负担进行比较。36例患者和31例照料者完成了调查。大多数照料者为女性（66%），配偶（81%），无合并症（72%）。他们的平均年龄为51±11岁。患者大多为男性（64%），ESRD病程中位数为60个月（四分位间距[IQR]，18 - 136个月），平均年龄为52±10岁。与照料者相比，患者的身体感知健康得分较低，但心理健康得分相似。47%的患者和25%的照料者存在抑郁标准。照料者或患者感知的总体负担相对较低。尽管接受NHD治疗的照料者和患者感知的总体负担相对较低，但两组中相当一部分人符合抑郁标准。需要进一步创新方法来支持进行NHD治疗的照料者和患者，以减少慢性病照料的干扰以及患抑郁症的风险。
