Joseph Shijo John, Bhandari Samrat Singh, Dutta Sanjiba, Khatri Dheeraj, Upadhyay Apoorva
Department of Psychiatry, Sikkim Manipal Institute of Medical Sciences, Sikkim Manipal University, Gangtok, Sikkim, India.
Department of Medicine, Sikkim Manipal Institute of Medical Sciences, Sikkim Manipal University, Gangtok, Sikkim, India.
Open J Psychiatry Allied Sci. 2021 Jul-Dec;12(2):96-100. doi: 10.5958/2394-2061.2021.00017.3. Epub 2022 Apr 11.
Caregivers face a lot of adversities while supporting their near ones undergoing haemodialysis, and their burden is often ignored by health professionals. The paucity of research in the Indian context has kept their needs out of sight.
To explore the level of burden in the caregivers of patients with chronic kidney disease (CKD) undergoing haemodialysis and to assess whether patient related variable affects the burden.
Fifty-one patients and their caregivers from two dialysis units in Sikkim, India, were assessed cross-sectionally. The Zarit Caregiver Burden Scale (ZCBS) was administered to measure the caregiver burden. The Patient Health Questionnaire-9 (PHQ-9) and the Charlson's Comorbidity Index (CCI) assessed the patient's depression and medical comorbidities, respectively. Descriptive analysis was done for the sociodemographic and clinical variables. Chi-square test was used to find the association between the categorical data. Kruskal-Wallis tested the association between categorical and quantitative variables.
Mean age of patient was 46.13 (±13.15) years and that of the caregiver was 44.78 (±12.14) years. 68.6% of caregivers had mild to severe levels of caregiver burden. Caregivers who were unemployed and educated till secondary school were more likely to report caregiver burden. Female gender, older caregivers, and caregivers attending patients with a longer history of haemodialysis reported a more severe burden.
The level of burden in caregivers of CKD patients is significant and is affected by various factors, which, in turn, also affects patient's wellbeing. Further research in this area is needed in our country for better management of patients and policymaking.
在支持其亲人接受血液透析的过程中，照顾者面临诸多困境，而他们的负担往往被医护人员忽视。印度背景下相关研究的匮乏使得他们的需求未被关注。
探讨接受血液透析的慢性肾脏病（CKD）患者照顾者的负担水平，并评估患者相关变量是否会影响负担。
对来自印度锡金邦两个透析单位的51名患者及其照顾者进行横断面评估。采用 Zarit 照顾者负担量表（ZCBS）来测量照顾者负担。患者健康问卷 -9（PHQ -9）和查尔森合并症指数（CCI）分别评估患者的抑郁情况和医疗合并症。对社会人口学和临床变量进行描述性分析。使用卡方检验来发现分类数据之间的关联。Kruskal - Wallis 检验用于检验分类变量和定量变量之间的关联。
患者的平均年龄为46.13（±13.15）岁，照顾者的平均年龄为44.78（±12.14）岁。68.6%的照顾者有轻度至重度的照顾者负担。失业且学历为中学的照顾者更有可能报告有照顾者负担。女性照顾者、年龄较大的照顾者以及照顾血液透析病史较长患者的照顾者报告的负担更重。
CKD患者照顾者的负担水平较高，且受到多种因素影响，这些因素反过来也会影响患者的健康状况。我国需要在该领域开展进一步研究，以更好地管理患者并制定政策。
