National Institute for the Study of Ageing and Later Life, Linköping University, Sweden.
Sociol Health Illn. 2012 Nov;34(8):1156-69. doi: 10.1111/j.1467-9566.2012.01460.x. Epub 2012 Feb 14.
This article focuses on individuals who are growing old with chronic illnesses and early onset impairments. Their experience of illness complications, bodily and functional losses is similar to what Bury has referred to as a biographical disruption. However, whereas Bury argues that a chronic illness amounts to a critical situation for the individual, partly due to its unexpected nature, this does not apply to the participants in our two studies. A second difference concerns Bury's implicit suggestion that the disruption is a single event that is characteristic of the early stage of a chronic illness. Repeated disruptions seemed to shape the lives of several of those interviewed. At the same time, this article challenges studies which suggest that the notion of disruption is less relevant to people in later life and to those who have experienced difficult lives, and also questions the argument that continuity rather than change characterises the lives of people who have had chronic conditions since their early years. In its approach, the article responds to Williams' request for studies in the sociology of chronic illness that extend the predominant biographical focus on the middle years of life to both ends of the life course.
本文关注的是那些患有慢性疾病和早期损伤的老年人。他们对疾病并发症、身体和功能丧失的体验与 Bury 所说的传记性中断类似。然而,尽管 Bury 认为慢性疾病对个人来说是一种危急情况,部分原因是其出乎意料的性质,但这并不适用于我们两项研究中的参与者。第二个区别涉及 Bury 的暗示,即中断是慢性疾病早期的一个单一事件,具有特征性。反复的中断似乎塑造了几位受访者的生活。同时,本文对那些认为中断的概念对晚年人群和生活困难人群的相关性较低的研究提出了质疑,也对那些从早年就患有慢性疾病的人认为连续性而不是变化特征化其生活的观点提出了质疑。在方法上,本文回应了 Williams 的请求,即在慢性疾病社会学研究中,将传记研究的主要重点从生命中期扩展到整个生命过程的两端。