Department of Nursing, St Catherine University, Saint Paul, MN, USA.
J Adv Nurs. 2012 Nov;68(11):2504-14. doi: 10.1111/j.1365-2648.2012.05949.x. Epub 2012 Feb 17.
The purpose of this paper was to report patients' understanding and perceptions of personal spasticity experiences over time.
Spasticity is an unpleasant and poorly understood experience associated with upper motor neuron disease.
An original qualitative study was conducted in 2008-2009.
Content analysis was used to extract meaning from the responses of 23 patients to semi-structured interviews during 7 days of acute rehabilitation for neurological diseases associated with spasticity. Findings. Patients used words reflecting muscle tone and spasms to describe spasticity. Themes reflecting the spasticity experience over time were Ambiguous Experiences, Navigating Symptom Experience, Wounded Self, and Unending Journey.
Spasticity as experienced is complex, involving a wide range of unusual sensations sensitive to stressors in everyday life. Clinical evaluation of spasticity should include patient reports. Knowledge about patient word choice used to describe spasticity can enhance communication with healthcare providers.
本文旨在报告患者对个人痉挛体验随时间变化的理解和感知。
痉挛是一种与上运动神经元疾病相关的不愉快且难以理解的体验。
这是一项原创的定性研究，于 2008-2009 年进行。
采用内容分析法，从 23 例与痉挛相关的神经疾病患者在急性康复期间 7 天内接受半结构化访谈的反应中提取意义。结果：患者使用反映肌肉张力和痉挛的词语来描述痉挛。反映痉挛随时间变化的主题包括：模糊体验、症状体验导航、受伤的自我和无尽的旅程。
痉挛的体验很复杂，涉及到日常生活中对压力源的广泛的异常感觉。痉挛的临床评估应包括患者报告。了解患者用来描述痉挛的词语选择，可以增强与医疗保健提供者的沟通。
