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住院姑息治疗患者的家庭照护者的心理教育团体干预:初步研究。

Psycho-educational group intervention for family caregivers of hospitalized palliative care patients: pilot study.

机构信息

Centre for Palliative Care c/o The University of Melbourne and St. Vincent's Hospital, Melbourne, Australia.

出版信息

J Palliat Med. 2012 Mar;15(3):277-81. doi: 10.1089/jpm.2011.0347. Epub 2012 Feb 22.

Abstract

BACKGROUND

Family caregivers of patients requiring palliative care commonly experience physical, social, and psychological burdens. Although family caregivers are acknowledged as valid service recipients of palliative care, many have unmet needs, and systematic reviews have shown there are limited evidence-based supportive interventions.

OBJECTIVES

This study aimed to develop and pilot test a psycho-educational group education program delivered in the inpatient specialist palliative care setting and designed to prepare primary family caregivers for the role of supporting a relative receiving hospital-based palliative care.

METHODS

(1) Development of education session and delivery protocol by the research team and expert panel; (2) pilot the intervention in three clinical sites (five sessions in total); (3) evaluate its accessibility and acceptability; and (4) preliminary testing of outcome measures used to access the intervention's effectiveness.

RESULTS AND CONCLUSION

The results revealed that the intervention was appropriate and acceptable to caregivers. The intervention needs to be tested in a larger sample to determine the potential benefits for caregivers' sense of preparedness and competence, and testing needs to ascertain if the intervention is accessible.

摘要

背景

需要姑息治疗的患者的家庭照顾者通常会承受身体、社会和心理负担。尽管家庭照顾者被认为是姑息治疗的有效服务接受者,但他们有许多未满足的需求,系统评价表明,基于证据的支持性干预措施有限。

目的

本研究旨在开发和试点检验一种在住院专科姑息治疗环境中提供的心理教育团体教育计划,旨在使主要家庭照顾者为支持在医院接受姑息治疗的亲属做好准备。

方法

(1)由研究团队和专家小组制定教育课程和交付方案;(2)在三个临床地点进行干预试点(共五节);(3)评估其可及性和可接受性;(4)初步测试用于评估干预效果的结果测量。

结果和结论

结果表明,该干预措施适合且可被照顾者接受。需要在更大的样本中测试该干预措施,以确定其对照顾者的准备感和能力的潜在益处,并需要测试该干预措施是否具有可及性。

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