Folkhälsan Research Center, Paasikivigatan 4, 00250 Helsinki, Finland.
Eur Child Adolesc Psychiatry. 2012 Apr;21(4):221-31. doi: 10.1007/s00787-012-0256-y. Epub 2012 Feb 23.
Foetal alcohol spectrum disorders (FASD) is a leading cause of intellectual disability in the western world. Children and adolescents with FASD are often exposed to a double burden in life, as their neurological sequelae are accompanied by adverse living surroundings exposing them to further environmental risk. In the present study, the adaptive abilities of a group of children and adolescents with FASD were examined using the Vineland Adaptive Behaviour Scales (VABS) and compared to those of a group of IQ-matched children with specific learning disorder (SLD) as well as with typically developing controls (CON). The results showed significantly different adaptive abilities among the groups: Children with FASD performed worse than IQ-matched children with SLD, who in turn performed worse than typically developing children on all domains (communication, daily living skills and socialization) on the VABS. Compared to the other groups, social skills declined with age in the FASD group. These results support previous studies of adaptive behaviour deficits in children with FASD and provide further evidence of the specificity of these deficits. On a societal level, more efforts and resources should be focused on recognizing and diagnosing FASD and supporting communication skills, daily living skills and most of all social skills across diagnostic groups within FASD. Without adequate intervention, adolescents and young adults with FASD run a great risk of marginalization and social maladjustment, costly not only to society but also to the lives of the many young people with FASD.
胎儿酒精谱系障碍(FASD)是西方世界智力残疾的主要原因。患有 FASD 的儿童和青少年经常面临双重负担,因为他们的神经后遗症伴随着不利的生活环境,使他们面临更多的环境风险。在本研究中,使用适应行为量表(VABS)检查了一组 FASD 儿童和青少年的适应能力,并将其与一组具有特定学习障碍(SLD)的智商匹配的儿童以及典型发育的对照组(CON)进行了比较。结果表明,各组之间的适应能力存在显著差异:FASD 儿童的适应能力明显差于 SLD 儿童,而 SLD 儿童的适应能力又明显差于正常发育的儿童,在 VABS 的所有领域(沟通、日常生活技能和社交)都表现较差。与其他组相比,FASD 组的社交技能随着年龄的增长而下降。这些结果支持了先前关于 FASD 儿童适应行为缺陷的研究,并提供了这些缺陷特异性的进一步证据。在社会层面上,应该更加重视识别和诊断 FASD,并在 FASD 中为所有诊断组提供支持沟通技能、日常生活技能,尤其是社交技能的资源。如果没有适当的干预,患有 FASD 的青少年和年轻成年人面临边缘化和社会适应不良的风险很大,这不仅对社会,而且对许多患有 FASD 的年轻人的生活都造成了巨大的代价。