Morgridge Institute for Research, Madison, Wisconsin, USA.
Genet Med. 2012 Apr;14(4):461-6. doi: 10.1038/gim.2012.5. Epub 2012 Mar 8.
Most discussions of researchers' duties to return incidental findings or research results to research participants or repository contributors fail to provide an adequate theoretical grounding for such duties. Returning findings is a positive duty, a duty to help somebody. Typically, such duties are specified narrowly such that helping is only a duty when it poses little or no risk or burden to the helper and does not interfere with her legitimate aims. Under current budgetary and personnel constraints, and with currently available information technology, routine return of individual findings from research using repository materials would constitute a substantial burden on the scientific enterprise and would seriously frustrate the aims of both scientists and specimen/data contributors. In most cases, researchers' limited duties to help repository contributors probably can be fulfilled by some action less demanding than returning individual findings. Furthermore, the duty-to-return issue should be analyzed as a conflict between (possibly) helping some contributors now and (possibly) helping a greater number of people who would benefit in the future from the knowledge produced by research.
大多数关于研究人员向研究参与者或研究资料提供者返还偶然发现或研究结果的义务的讨论,都未能为这些义务提供充分的理论基础。返还研究结果是一项积极的义务,即帮助他人的义务。通常情况下,这些义务的范围被严格限定,只有在帮助他人几乎没有风险或负担,且不干扰其合法目标的情况下,帮助才是一种义务。在当前的预算和人员限制下,以及在当前可用的信息技术条件下,从利用存储库材料进行的研究中例行返还个体研究结果,将给科学事业带来巨大负担,并且严重阻碍科学家和标本/数据提供者的目标的实现。在大多数情况下,研究人员帮助存储库提供者的有限义务可能可以通过比返还个体研究结果要求更低的某种行动来履行。此外,返还义务的问题应作为(可能)现在帮助一些提供者和(可能)帮助更多未来从研究产生的知识中受益的人的利益之间的冲突来分析。