Return of research results from genomic biobanks: cost matters.
作者信息
Bledsoe Marianna J, Clayton Ellen Wright, McGuire Amy L, Grizzle William E, O'Rourke P Pearl, Zeps Nikolajs
出版信息
Genet Med. 2013 Feb;15(2):103-5. doi: 10.1038/gim.2012.105. Epub 2012 Aug 30.
Abstract
摘要
相似文献
1
Return of research results from genomic biobanks: cost matters.
Genet Med. 2013 Feb;15(2):103-5. doi: 10.1038/gim.2012.105. Epub 2012 Aug 30.
2
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genet Med. 2012 Apr;14(4):361-84. doi: 10.1038/gim.2012.23.
3
An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks.
Genet Med. 2012 Apr;14(4):444-50. doi: 10.1038/gim.2012.20. Epub 2012 Feb 23.
4
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.
Genet Med. 2012 Apr;14(4):484-9. doi: 10.1038/gim.2012.13. Epub 2012 Feb 16.
5
Practical implementation issues and challenges for biobanks in the return of individual research results.
Genet Med. 2012 Apr;14(4):478-83. doi: 10.1038/gim.2011.67. Epub 2012 Feb 9.
6
Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants.
Genet Med. 2012 Apr;14(4):385-92. doi: 10.1038/gim.2011.69. Epub 2012 Mar 1.
7
Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project.
Genet Med. 2012 Apr;14(4):393-8. doi: 10.1038/gim.2011.78. Epub 2012 Feb 16.
8
A closer look revisited: are we subjects or are we donors?
Genet Med. 2012 Apr;14(4):458-60. doi: 10.1038/gim.2012.6. Epub 2012 Feb 23.
9
The legal risks of returning results of genomics research.
Genet Med. 2012 Apr;14(4):473-7. doi: 10.1038/gim.2012.10. Epub 2012 Feb 9.
10
Taking aims seriously: repository research and limits on the duty to return individual research findings.
Genet Med. 2012 Apr;14(4):461-6. doi: 10.1038/gim.2012.5. Epub 2012 Mar 8.
引用本文的文献
1
Uptake of Genetic Research Results and Patient-Reported Outcomes With Return of Results Incorporating Web-Based Predisclosure Education.
J Clin Oncol. 2023 Nov 1;41(31):4905-4915. doi: 10.1200/JCO.22.00516. Epub 2023 Aug 23.
2
Feeding back of individual genetic results in Botswana: mapping opportunities and challenges.
BMC Med Ethics. 2023 Jun 3;24(1):37. doi: 10.1186/s12910-023-00912-1.
3
Return of Results in Genomic Research Using Large-Scale or Whole Genome Sequencing: Toward a New Normal.
Annu Rev Genomics Hum Genet. 2023 Aug 25;24:393-414. doi: 10.1146/annurev-genom-101122-103209. Epub 2023 Mar 13.
4
Returning actionable genomic results in a research biobank: Analytic validity, clinical implementation, and resource utilization.
Am J Hum Genet. 2021 Dec 2;108(12):2224-2237. doi: 10.1016/j.ajhg.2021.10.005. Epub 2021 Nov 8.
5
Systematic Review of the Economic Evaluation of Returning Incidental Findings in Genomic Research.
Front Public Health. 2021 Jul 1;9:697381. doi: 10.3389/fpubh.2021.697381. eCollection 2021.
6
An international policy on returning genomic research results.
Genome Med. 2021 Jul 15;13(1):115. doi: 10.1186/s13073-021-00928-5.
7
Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review.
Ethics Med Public Health. 2021 Sep;18. doi: 10.1016/j.jemep.2021.100684. Epub 2021 Jun 7.
8
Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants.
J Community Genet. 2021 Oct;12(4):577-592. doi: 10.1007/s12687-021-00536-1. Epub 2021 Jul 9.
9
Return of genetic and genomic research findings: experience of a pediatric biorepository.
BMC Med Genomics. 2019 Nov 27;12(1):173. doi: 10.1186/s12920-019-0618-0.
10
Preferences for Return of Genetic Results Among Participants in the Jackson Heart Study and Framingham Heart Study.
Circ Genom Precis Med. 2019 Dec;12(12):e002632. doi: 10.1161/CIRCGEN.119.002632. Epub 2019 Nov 22.
本文引用的文献
1
DNA donor rights affirmed.
Nature. 2012 Mar 21;483(7390):387. doi: 10.1038/483387a.
2
Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
Genet Med. 2012 Apr;14(4):361-84. doi: 10.1038/gim.2012.23.
3
Taking aims seriously: repository research and limits on the duty to return individual research findings.
Genet Med. 2012 Apr;14(4):461-6. doi: 10.1038/gim.2012.5. Epub 2012 Mar 8.
4
Practical implementation issues and challenges for biobanks in the return of individual research results.
Genet Med. 2012 Apr;14(4):478-83. doi: 10.1038/gim.2011.67. Epub 2012 Feb 9.
5
Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.
Genome Res. 2012 Mar;22(3):421-8. doi: 10.1101/gr.127845.111. Epub 2012 Jan 6.
Zotero 插件