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DISC(社会背景下的糖尿病)研究-评估一种针对社会经济地位较低的糖尿病患者的文化敏感型社交网络干预措施:研究方案。

The DISC (Diabetes in Social Context) Study-evaluation of a culturally sensitive social network intervention for diabetic patients in lower socioeconomic groups: a study protocol.

机构信息

Department of Public Health, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.

出版信息

BMC Public Health. 2012 Mar 19;12:199. doi: 10.1186/1471-2458-12-199.

Abstract

BACKGROUND

Compared to those in higher socioeconomic groups, diabetic patients in lower socioeconomic groups have less favourable metabolic control and experience more diabetes-related complications. They encounter specific barriers that hinder optimal diabetes self-management, including a lack of social support and other psychosocial mechanisms in their immediate social environments. Powerful Together with Diabetes is a culturally sensitive social network intervention specifically targeted to ethnic Dutch, Moroccan, Turkish, and Surinamese diabetic patients in lower socioeconomic groups. For ten months, patients will participate in peer support groups in which they will share experiences, support each other in maintaining healthy lifestyles, and learn skills to resist social pressure. At the same time, their significant others will also receive an intervention, aimed at maximizing support for and minimizing the negative social influences on diabetes self-management. This study aims to test the effectiveness of Powerful Together with Diabetes.

METHODS/DESIGN: We will use a quasi-experimental design with an intervention group (Group 1) and two comparison groups (Groups 2 and 3), N = 128 in each group. Group 1 will receive Powerful Together with Diabetes. Group 2 will receive Know your Sugar, a six-week group intervention that does not focus on the participants' social environments. Group 3 receives standard care only. Participants in Groups 1 and 2 will be interviewed and physically examined at baseline, 3, 10, and 16 months. We will compare their haemoglobin A1C levels with the haemoglobin A1C levels of Group 3. Main outcome measures are haemoglobin A1C, diabetes-related quality of life, diabetes self-management, health-related, and intermediate outcome measures. We will conduct a process evaluation and a qualitative study to gain more insights into the intervention fidelity, feasibility, and changes in the psychosocial mechanism in the participants' immediate social environments.

DISCUSSION

With this study, we will assess the feasibility and effectiveness of a culturally sensitive social network intervention for lower socioeconomic groups. Furthermore, we will study how to enable these patients to optimally manage their diabetes.

摘要

背景

与社会经济地位较高的糖尿病患者相比,社会经济地位较低的糖尿病患者的代谢控制效果较差,且更容易出现糖尿病相关并发症。他们面临着一些特殊的障碍,这些障碍会阻碍他们进行最佳的糖尿病自我管理,包括在其直接社会环境中缺乏社会支持和其他心理社会机制。Powerful Together with Diabetes 是一种针对社会经济地位较低的荷兰裔、摩洛哥裔、土耳其裔和苏里南裔糖尿病患者的文化敏感型社交网络干预措施。在十个月的时间里,患者将参加同伴支持小组,分享经验,相互支持保持健康的生活方式,并学习技能以抵抗社会压力。与此同时,他们的重要他人也将接受干预,旨在最大限度地支持和最小化对糖尿病自我管理的负面影响。本研究旨在测试 Powerful Together with Diabetes 的有效性。

方法/设计:我们将采用准实验设计,包括一个干预组(第 1 组)和两个对照组(第 2 组和第 3 组),每组 128 人。第 1 组将接受 Powerful Together with Diabetes。第 2 组将接受 Know your Sugar,这是一项为期六周的小组干预措施,不关注参与者的社会环境。第 3 组仅接受标准护理。第 1 组和第 2 组的参与者将在基线、3 个月、10 个月和 16 个月时接受访谈和体检。我们将比较他们的糖化血红蛋白水平与第 3 组的糖化血红蛋白水平。主要观察指标是糖化血红蛋白、糖尿病相关生活质量、糖尿病自我管理、健康相关和中间结果指标。我们将进行过程评估和定性研究,以更深入地了解干预的忠实度、可行性以及参与者直接社会环境中的心理社会机制的变化。

讨论

通过这项研究,我们将评估针对社会经济地位较低群体的文化敏感型社交网络干预措施的可行性和有效性。此外,我们将研究如何使这些患者能够最佳地管理他们的糖尿病。

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