英国医疗统计中的族群数据收集：南亚视角。
UK ethnicity data collection for healthcare statistics: the South Asian perspective.
机构信息
Warwick Clinical Trials Unit, Division of Health Sciences, Warwick Medical School, The University of Warwick, Coventry, UK.
出版信息
BMC Public Health. 2012 Mar 27;12:243. doi: 10.1186/1471-2458-12-243.
BACKGROUND
Ethnicity data collection has been proven to be important in health care but despite government initiatives remains incomplete and mostly un-validated in the UK. Accurate self-reported ethnicity data would enable experts to assess inequalities in health and access to services and help to ensure resources are targeted appropriately. The aim of this paper is to explore the reasons for the observed gap in ethnicity data by examining the perceptions and experiences of healthy South Asian volunteers. South Asians are the largest ethnic minority group accounting for 50% of all ethnic minorities in the UK 2001 census.
METHODS
Five focus groups, conducted by trained facilitators in the native language of each group, recruited 36 South Asian volunteers from local community centres and places of worship. The topic guide focused on five key areas:1) general opinions on the collection of ethnicity, 2) experiences of providing ethnicity information, 3) categories used in practice, 4) opinions of other indicators of ethnicity e.g. language, religion and culture and 5) views on how should this information be collected. The translated transcripts were analysed using a qualitative thematic approach.
RESULTS
The findings of this Cancer Research UK commissioned study revealed that participants felt that accurate recording of ethnicity data was important in healthcare with several stating the increased prevalence of certain diseases in minority ethnic groups as an appropriate justification to improve this data. The overwhelming majority raised no objections to providing this data when the purpose of data collection is fully explained.
CONCLUSIONS
This study confirmed that the collection of patients' ethnicity data is deemed important by potential patients but there remains uncertainty and unease as to how the data may be used. A common theme running through the focus groups was the willingness to provide these data, strongly accompanied by a desire to have more information with regard to its use.
背景
种族数据收集已被证明在医疗保健中很重要，但尽管政府采取了举措，在英国仍不完整且大多未经验证。准确的自我报告种族数据将使专家能够评估健康和获得服务方面的不平等，并有助于确保资源得到适当的定位。本文旨在通过检查健康南亚志愿者的看法和经验，探讨观察到的种族数据差距的原因。南亚人是最大的少数族裔群体，占 2001 年英国人口普查中所有少数族裔的 50%。
方法
在每个群体的母语中，由经过培训的主持人进行了五次焦点小组，从当地社区中心和礼拜场所招募了 36 名南亚志愿者。主题指南侧重于五个关键领域：1）对种族收集的总体看法，2）提供种族信息的经验，3）实践中使用的类别，4）对其他种族指标的看法，例如语言、宗教和文化，以及 5）关于应该如何收集此信息的看法。使用定性主题方法分析翻译后的文字记录。
结果
这项由英国癌症研究中心委托进行的研究结果表明，参与者认为准确记录种族数据在医疗保健中很重要，有几位参与者表示，某些少数族裔群体中某些疾病的高发率是改进该数据的合理理由。绝大多数人在充分解释数据收集目的的情况下，对提供这些数据没有异议。
结论
这项研究证实，患者的种族数据收集被潜在患者认为很重要，但对于数据如何使用仍存在不确定性和不安。贯穿焦点小组的一个共同主题是愿意提供这些数据，强烈伴随着对有关其使用的更多信息的渴望。
Zotero 插件