Leonardi Matilde, Martinuzzi Andrea, Meucci Paolo, Sala Marina, Russo Emanuela, Buffoni Mara, Raggi Alberto
Neurology, Public Health and Disability Unit-Scientific Directorate, Neurological Institute C. Besta IRCCS Foundation, Via Celoria 11, 20133 Milano, Italy.
ScientificWorldJournal. 2012;2012:189097. doi: 10.1100/2012/189097. Epub 2012 Feb 1.
Aim of this paper is to describe functioning of subjects with "severe disability" collected with a protocol based on the International Classification of Functioning, Disability, and Health. It included sections on body functions and structures (BF and BS), activities and participation (A&P), and environmental factors (EF). In A&P, performance without personal support (WPS) was added to standard capacity and performance. Persons with severe disability were those reporting a number of very severe/complete problems in BF or in A&P-capacity superior to mean + 1SD. Correlations between BF and A&P and differences between capacity, performance-WPS, and performance were assessed with Spearman's coefficient. Out of 1051, 200 subjects were considered as severely disabled. Mild to moderate correlations between BF and A&P were reported (between 0.148 and 0.394 when the full range of impairments/limitations was taken into account; between 0.198 and 0.285 when only the severe impairments/limitations were taken into account); performance-WPS was less similar to performance than to capacity. Our approach enabled identifying subjects with "severe disability" and separating the effect of personal support from that of devices, policies, and service provision.
本文旨在描述按照基于《国际功能、残疾和健康分类》的方案收集的“严重残疾”受试者的功能情况。它包括身体功能和结构(BF和BS)、活动与参与(A&P)以及环境因素(EF)等部分。在A&P中,将无个人支持下的表现(WPS)纳入了标准能力和表现之中。严重残疾者是指那些报告在BF或A&P能力方面存在一些非常严重/完全的问题且高于均值+1标准差的人。使用斯皮尔曼系数评估BF与A&P之间的相关性以及能力、无个人支持下的表现(WPS)和表现之间的差异。在1051名受试者中,有200名被视为严重残疾。报告了BF与A&P之间存在轻度至中度的相关性(当考虑到全部损伤/限制范围时,相关性在0.148至0.394之间;当仅考虑严重损伤/限制时,相关性在0.198至0.285之间);无个人支持下的表现(WPS)与表现的相似性低于其与能力的相似性。我们的方法能够识别出“严重残疾”受试者,并将个人支持的影响与设备、政策和服务提供的影响区分开来。