Sadala Maria Lúcia Araújo, Bruzos Gabriela Azevedo de Souza, Pereira Estela Regina, Bucuvic Edwa Maria
Departamento de Enfermagem, Faculdade de Medicina de Botucatu, Universidade Estadual Paulista Júlio de Mesquita Filho, SP, Brazil.
Rev Lat Am Enfermagem. 2012 Jan-Feb;20(1):68-75. doi: 10.1590/s0104-11692012000100010.
The aim of this study was to highlight the meaning of home dialysis as experienced by patients with chronic renal failure. The research design was influenced by Ricoeur's phenomenology. Nineteen patients from a Brazilian public hospital were interviewed, from May to September 2009. Interviews were guided by the question: "Tell me about your experiences lived undergoing PD". Findings unveiled the patients' perception of the drastic changes in their existence, consequent to disease and treatment; and the perception of themselves in that process. The feeling of anguish, physical pain and deprivations were part of living that condition. They foresee an uncertain future, depending on the expertise of health care providers and the demands on support of significant others. Findings suggest that individual aspects of patients' experiences must be considered if health care providers are to facilitate positive health outcomes.
本研究的目的是突出慢性肾衰竭患者所体验到的家庭透析的意义。该研究设计受利科现象学的影响。2009年5月至9月,对巴西一家公立医院的19名患者进行了访谈。访谈以“告诉我你进行腹膜透析的经历”这一问题为引导。研究结果揭示了患者对因疾病和治疗导致的生活急剧变化的认知,以及他们在这一过程中的自我认知。痛苦、身体疼痛和匮乏感是处于这种状况下生活的一部分。他们预见未来不确定,这取决于医疗保健提供者的专业知识以及来自重要他人的支持需求。研究结果表明,如果医疗保健提供者想要促进积极的健康结果,就必须考虑患者经历的个体方面。