Wu Albert W, Snyder Claire
Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Joint Appointments in Epidemiology, International Health; Medicine, and Surgery, Baltimore, USA.
Healthc Pap. 2011;11(4):48-53; discussion 55-8. doi: 10.12927/hcpap.2012.22705.
Patient-reported outcome measures (PROMs) include reports and ratings provided by patients or their proxies about their health, functioning, health behaviours and quality of care. PROMs reflect the patient perspective and increase the comprehensiveness of outcome measurement in clinical research. There is growing interest in using PROMs in clinical practice: for screening, monitoring and improving communication at the individual level; and to aid in decision-making, monitor populations and assess quality in the aggregate. For use in clinical practice, the authors draw an analogy to getting to the prom (a North American graduation dance). Whom to go with? They recommend seeking a group of partners and developing methods and standards with national and international groups. The authors advocate for incentives to encourage broad participation. What to wear? They suggest selecting existing, well-tested PROMs and highlight the ability of dynamic questionnaires to provide tailored assessments. How to get there? The authors recommend web-based formatting of measures and results, using their system, PatientViewpoint, as an example. How to get the most out of the experience? They discuss the variety of applications of PROMs data and recommend providing clinicians with actions that they can take to mitigate problems in non-clinical domains.
患者报告结局测量（PROMs）包括患者或其代理人提供的关于自身健康、功能、健康行为及护理质量的报告和评分。PROMs反映了患者的观点，提高了临床研究中结局测量的全面性。在临床实践中使用PROMs的兴趣日益浓厚：用于个体层面的筛查、监测和改善沟通；并有助于决策、监测人群以及总体评估质量。对于在临床实践中的应用，作者将其类比为参加高中毕业舞会（一种北美毕业舞会）。和谁一起去？他们建议寻找一群合作伙伴，并与国家和国际组织共同制定方法和标准。作者主张提供激励措施以鼓励广泛参与。穿什么？他们建议选择现有的、经过充分测试的PROMs，并强调动态问卷能够提供个性化评估的能力。如何到达那里？作者以他们的系统PatientViewpoint为例，建议对测量方法和结果采用基于网络的格式。如何从这次经历中获得最大收益？他们讨论了PROMs数据的各种应用，并建议为临床医生提供他们可以采取的行动，以缓解非临床领域的问题。
