Division of General Internal Medicine, Department of Medicine, Johns Hopkins School of Medicine, Baltimore, MD 21205–1901, USA.
Psychooncology. 2013 Apr;22(4):895-901. doi: 10.1002/pon.3087. Epub 2012 Apr 30.
The PatientViewpoint website collects patient-reported outcomes and links them with the electronic health record to aid patient management. This pilot test evaluated PatientViewpoint's use, usefulness, and acceptability to patients and clinicians.
This was a single-arm prospective study that enrolled breast and prostate cancer patients undergoing treatment and the clinicians who managed them. Patients completed patient-reported outcomes every 2 weeks, and clinicians could access the results for patient visits. Scores that were poor relative to norms or substantially worse than the previous assessment were highlighted. After three on-study visits, we assessed patient and clinician perspectives on PatientViewpoint using close-ended and open-ended questions.
Eleven out of 12 eligible clinicians (92%) and 52/76 eligible patients (68%) enrolled. Patients completed a median of 71% of assigned questionnaires; clinicians reported using the information for 79% of patients, most commonly as a source of additional information (51%). At the median, score reports identified three potential issues, of which 1 was discussed during the visit. Patients reported the system was easy to use (92%), useful (70%), aided recall of symptoms/side effects (72%), helped them feel more in control of their care (60%), improved discussions with their provider (49%), and improved care quality (39%). Patients and clinicians desired more information on score interpretation and minor adjustments to site navigation.
These results support the feasibility and value of PatientViewpoint. An ongoing study is using a continuous quality improvement approach to further refine PatientViewpoint. Future studies will evaluate its impact on patient care and outcomes.
PatientViewpoint 网站收集患者报告的结果，并将其与电子健康记录相关联，以帮助患者管理。本试点研究评估了 PatientViewpoint 在患者和临床医生中的使用情况、有用性和可接受性。
这是一项单臂前瞻性研究，纳入正在接受治疗的乳腺癌和前列腺癌患者以及管理他们的临床医生。患者每 2 周完成一次患者报告的结果，临床医生可以在就诊时访问这些结果。与规范相比较差或明显比前一次评估更差的分数会被突出显示。在三次研究就诊后，我们使用封闭式和开放式问题评估了患者和临床医生对 PatientViewpoint 的看法。
12 名符合条件的临床医生中有 11 名（92%）和 76 名符合条件的患者中有 52 名（68%）入组。患者完成了分配问卷的中位数为 71%；临床医生报告说，他们为 79%的患者使用了这些信息，最常见的是作为额外信息的来源（51%）。在中位数水平上，评分报告确定了三个潜在问题，其中 1 个在就诊期间进行了讨论。患者报告该系统易于使用（92%）、有用（70%）、有助于他们回忆症状/副作用（72%）、帮助他们更好地控制自己的护理（60%）、改善与提供者的讨论（49%）以及改善护理质量（39%）。患者和临床医生希望获得更多关于评分解释的信息和对网站导航的小调整。
这些结果支持了 PatientViewpoint 的可行性和价值。正在进行的一项研究正在使用持续质量改进方法进一步改进 PatientViewpoint。未来的研究将评估其对患者护理和结果的影响。
