Golden Shannon L, Nageswaran Savithri
Wake Forest School of Medicine, Winston-Salem, NC 27157, USA.
Clin Pediatr (Phila). 2012 Aug;51(8):723-9. doi: 10.1177/0009922812445920. Epub 2012 May 4.
Children with complex chronic conditions (CCC) receive care from multiple providers and agencies for a prolonged period of time. Coordination of care between providers is essential in the care of children with CCC. The purpose of this study was to determine which aspects of care coordination are important to caregivers and explore the challenges faced by caregivers in coordinating care. Using focus group methodology, the authors elicited experiences of caregivers relative to care coordination for children with CCC. Several themes emerged: (a) more information sharing and quality communication is needed among all those involved in providing care for children with CCC, (b) caregivers need help in navigating the system of care, and (c) caregivers develop strategies to cope with care coordination demands. Caregiver burden of coordinating care for children with CCC can be alleviated in part through improved communication and collaboration between agencies and providers and through developing easier ways to navigate a complex health system.
患有复杂慢性病（CCC）的儿童需要长期接受来自多个提供者和机构的护理。提供者之间的护理协调对于患有CCC的儿童的护理至关重要。本研究的目的是确定护理协调的哪些方面对照顾者很重要，并探讨照顾者在协调护理时面临的挑战。作者采用焦点小组方法，引出了照顾者在CCC儿童护理协调方面的经历。出现了几个主题：（a）所有参与为CCC儿童提供护理的人员之间需要更多的信息共享和高质量沟通；（b）照顾者在应对护理系统方面需要帮助；（c）照顾者制定策略来应对护理协调需求。通过改善机构和提供者之间的沟通与协作，以及开发更便捷的方式来应对复杂的医疗系统，可部分减轻照顾者协调CCC儿童护理的负担。
