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本文引用的文献

1
Measuring the Barriers to Adherence With Neurology Clinic Appointments for Children With Epilepsy: A Pilot Study.测量癫痫患儿神经内科门诊预约依从性的障碍:一项试点研究。
Child Neurol Open. 2021 Apr 27;8:2329048X211012544. doi: 10.1177/2329048X211012544. eCollection 2021 Jan-Dec.
2
Management of Early Post-Operative Complications of Esophageal Atresia With Tracheoesophageal Fistula: A Retrospective Study.食管闭锁合并气管食管瘘术后早期并发症的管理:一项回顾性研究
Cureus. 2020 Dec 4;12(12):e11904. doi: 10.7759/cureus.11904.
3
Collaboration for children with complex needs: What adolescents, parents, and practitioners tell us.合作满足复杂需求儿童的需要:青少年、家长和从业者告诉我们的。
J Child Health Care. 2020 Mar;24(1):19-32. doi: 10.1177/1367493518823906. Epub 2019 Jan 27.
4
Are prophylactic anti-reflux medications effective after esophageal atresia repair? Systematic review and meta-analysis.食管闭锁修复术后预防性抗反流药物是否有效?系统评价与荟萃分析。
Pediatr Surg Int. 2018 May;34(5):491-497. doi: 10.1007/s00383-018-4242-4. Epub 2018 Mar 13.
5
Respiratory Morbidity in Children with Repaired Congenital Esophageal Atresia with or without Tracheoesophageal Fistula.先天性食管闭锁合并或不合并气管食管瘘修复术后儿童的呼吸道发病率
Int J Environ Res Public Health. 2017 Sep 27;14(10):1136. doi: 10.3390/ijerph14101136.
6
Respiratory problems in children with esophageal atresia and tracheoesophageal fistula.儿童食管闭锁和气管食管瘘的呼吸问题。
Ital J Pediatr. 2017 Sep 5;43(1):77. doi: 10.1186/s13052-017-0396-2.
7
The Effect of a Comprehensive Care Transition Model on Cost and Utilization for Medically Complex Children With Cerebral Palsy.综合护理过渡模式对患有脑瘫的医疗复杂儿童的成本和利用率的影响。
J Pediatr Health Care. 2017 Nov-Dec;31(6):634-647. doi: 10.1016/j.pedhc.2017.04.017. Epub 2017 Jun 13.
8
Postoperative Complications and Functional Outcome after Esophageal Atresia Repair: Results from Longitudinal Single-Center Follow-Up.食管闭锁修复术后的并发症及功能结局:单中心纵向随访结果
J Gastrointest Surg. 2017 Jun;21(6):927-935. doi: 10.1007/s11605-017-3423-0. Epub 2017 Apr 19.
9
Swallowing Dysfunction and Quality of Life in Adults With Surgically Corrected Esophageal Atresia/Tracheoesophageal Fistula as Infants: Forty Years of Follow-up.婴儿期手术矫正的食管闭锁/气管食管瘘成人的吞咽功能障碍和生活质量:40 年随访。
Ann Surg. 2017 Aug;266(2):305-310. doi: 10.1097/SLA.0000000000001978.
10
ESPGHAN-NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children With Esophageal Atresia-Tracheoesophageal Fistula.欧洲儿科胃肠病、肝病和营养学会-北美儿科胃肠病、肝病和营养学会食管闭锁-气管食管瘘患儿胃肠道及营养并发症评估与治疗指南
J Pediatr Gastroenterol Nutr. 2016 Nov;63(5):550-570. doi: 10.1097/MPG.0000000000001401.

食管闭锁和气管食管瘘患儿的多学科护理协调

Multidisciplinary coordination of care for children with esophageal atresia and tracheoesophageal fistula.

作者信息

Platt Jody M, Nettel-Aguirre Alberto, Bjornson Candice L, Mitchell Ian, Davis Kathryn, Bailey Ja Michelle

机构信息

Department of Pediatrics, Cummings School of Medicine, University of Calgary, Calgary, AB, Canada.

Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.

出版信息

J Child Health Care. 2025 Mar;29(1):67-78. doi: 10.1177/13674935231174503. Epub 2023 May 24.

DOI:10.1177/13674935231174503
PMID:37224564
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11874603/
Abstract

Esophageal Atresia/Tracheoesophageal Atresia (EA/TEF) is a multisystem congenital anomaly. Historically, children with EA/TEF lack coordinated care. A multidisciplinary clinic was established in 2005 to provide coordinated care and improve access to outpatient care. This single-center retrospective cohort study was conducted to describe our cohort of patients with EA/TEF born between March 2005 and March 2011, assess coordination of care, and to compare outcomes of children in the multidisciplinary clinic to the previous cohort without a multi-disciplinary clinic. A chart review identified demographics, hospitalizations, emergency visits, clinic visits, and coordination of outpatient care. Twenty-seven patients were included; 75.9% had a C-type EA/TEF. Clinics provided multidisciplinary care and compliance with the visit schedule was high with a median of 100% (IQR 50). Compared to the earlier cohort, the new cohort ( = 27) had fewer hospital admissions and LOS was reduced significantly in the first 2 years of life. Multidisciplinary care clinics for medically complex children can improve coordination of visits with multiple health care providers and may contribute to reduced use of acute care services.

摘要

食管闭锁/气管食管瘘(EA/TEF)是一种多系统先天性异常。从历史上看,患有EA/TEF的儿童缺乏协调的护理。2005年设立了一个多学科诊所,以提供协调的护理并改善门诊护理的可及性。进行这项单中心回顾性队列研究,以描述我们在2005年3月至2011年3月期间出生的EA/TEF患者队列,评估护理的协调性,并将多学科诊所中儿童的结局与之前没有多学科诊所的队列进行比较。通过病历审查确定了人口统计学、住院情况、急诊就诊、门诊就诊以及门诊护理的协调性。纳入了27名患者;75.9%患有C型EA/TEF。诊所提供多学科护理,就诊时间表的依从性很高,中位数为100%(四分位间距50)。与早期队列相比,新队列(n = 27)的住院次数较少,并且在生命的头2年中住院时间显著缩短。针对病情复杂儿童的多学科护理诊所可以改善与多个医疗服务提供者的就诊协调性,并可能有助于减少急性护理服务的使用。