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“我也是人!” 当地道德环境中的抗逆转录病毒治疗

'I am also a human being!' Antiretroviral treatment in local moral worlds.

作者信息

Mattes Dominik

机构信息

Institute of Social and Cultural Anthropology, Freie Universität Berlin, Germany.

出版信息

Anthropol Med. 2012 Apr;19(1):75-84. doi: 10.1080/13648470.2012.660463.

Abstract

The experiences and practices of antiretroviral drug consumers in Tanzania are shaped by economic scarcity, limited state-provided social welfare, and fragile kinship-based solidarity. Embedding antiretroviral therapy (ART) in patients' 'local moral worlds' brings further existential dimensions to the fore that articulate closely with the priority the treatment acquires in their lives. An exemplary case study of a middle-aged HIV-positive man suggests that dignity, social recognition, and belonging may be of central interest and temporarily overshadow patients' concern for mere survival. A stronger focus on patients' moral concerns contributes to a better understanding of the complex dynamics that prevent HIV-positive people from becoming the 'pharmaceutical selves' that are promoted during treatment enrolment. Moreover, it is indispensable to account for the lived experiences of patients struggling with what too readily has been termed a 'chronic disease'.

摘要

坦桑尼亚抗逆转录病毒药物使用者的经历和做法受到经济匮乏、国家提供的社会福利有限以及基于亲属关系的脆弱团结的影响。将抗逆转录病毒疗法(ART)融入患者的“当地道德世界”,进一步凸显了与治疗在他们生活中所获优先级紧密相连的生存维度。对一名中年艾滋病毒阳性男子的典型案例研究表明,尊严、社会认可和归属感可能是核心关注点,并暂时掩盖了患者对单纯生存的担忧。更加强调患者的道德关切有助于更好地理解那些阻止艾滋病毒阳性者成为治疗登记时所倡导的“药物自我”的复杂动态。此外,考虑那些与常被称为“慢性病”作斗争的患者的生活经历是必不可少的。

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