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处于过渡阶段:坦桑尼亚艾滋病毒感染者努力过上“正常”生活的挣扎

Caught in transition: the struggle to live a 'normal' life with HIV in Tanzania.

作者信息

Mattes Dominik

机构信息

a Institute of Social and Cultural Anthropology , Freie Universität , Berlin.

出版信息

Med Anthropol. 2014;33(4):270-87. doi: 10.1080/01459740.2013.877899.

Abstract

According to global health discourses, antiretroviral treatment (ART) enables ever more people living with HIV to resume a 'normal' life: a return to health and the reconstruction of social relations. Based on 15 months of fieldwork in Tanga, Tanzania, I explore the extent to which patients 'on the ground' have experienced the shift of HIV from an acute and rapidly deteriorating condition to a 'normal chronic' condition. Drawing on semistructured interviews and participant observation in treatment centers and private households, I juxtapose the discourse of health care providers on 'normalcy' with patients' narratives of everyday life with HIV. I argue that in the context of severe poverty and persistent stigmatization, the transition to normalcy suggested by health care providers during treatment preparation has been difficult for many patients to achieve. Their social quandaries and moral dilemmas suggest that ART introduces new uncertainties into their lives, which keep them trapped in a state of 'permanent transition.'

摘要

根据全球卫生话语,抗逆转录病毒治疗(ART)使越来越多的艾滋病毒感染者能够恢复“正常”生活:恢复健康并重建社会关系。基于在坦桑尼亚坦噶进行的15个月实地调查,我探讨了当地患者在多大程度上经历了艾滋病毒从急性且迅速恶化的疾病向“正常慢性病”的转变。通过在治疗中心和私人家庭进行的半结构化访谈和参与观察,我将医疗服务提供者关于“正常状态”的话语与患者感染艾滋病毒后的日常生活叙述并列起来。我认为,在严重贫困和持续污名化的背景下,医疗服务提供者在治疗准备过程中所建议的向正常状态的转变,对许多患者来说很难实现。他们的社会困境和道德困境表明,抗逆转录病毒治疗给他们的生活带来了新的不确定性,使他们陷入“永久过渡”的状态。

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