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类风湿关节炎护理中的患者目标:一项系统评价与定性综合分析

Patient goals in rheumatoid arthritis care: A systematic review and qualitative synthesis.

作者信息

Hulen Elizabeth, Ervin Ayla, Schue Allison, Evans-Young Gina, Saha Somnath, Yelin Edward H, Barton Jennifer L

机构信息

Center to Improve Veteran Involvement in Care, VA Portland Health Care System, USA.

University of California San Francisco, USA.

出版信息

Musculoskeletal Care. 2017 Dec;15(4):295-303. doi: 10.1002/msc.1173. Epub 2016 Dec 14.

DOI:10.1002/msc.1173
PMID:27976535
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5471121/
Abstract

OBJECTIVE

During the clinical encounter, rheumatoid arthritis (RA) patient goals for care often go unexplored. The aim of the present systematic review was to identify needs, goals and expectations of RA patients in order better to guide systematic elicitation of patient goals in clinical encounters.

METHODS

An academic librarian searched MEDLINE, PsychINFO and the Cochrane Library using a specialized algorithm developed to identify articles about patient goals for RA care. Investigators screened search results according to prespecified inclusion criteria and then reviewed included articles and synthesized the evidence qualitatively, utilizing an inductive approach.

RESULTS

A total of 909 titles were retrieved in the literature search, of which 871 were excluded after a title/abstract screen. Of the remaining 38, 22 papers were included in the final review. Investigators identified four major themes in the literature: (a) the bodily experience of RA; (b) achieving normalcy and maintaining wellness; (c) social connectedness and support; and (d) interpersonal and healthcare system interactions.

CONCLUSION

Patients' goals when receiving care for RA are multidimensional and span several facets of everyday life. Goals for RA care should be collaboratively developed between patients and providers, with particular attention to the patient's life context and priorities.

摘要

目的

在临床诊疗过程中,类风湿关节炎(RA)患者的护理目标常常未得到探究。本系统评价的目的是确定RA患者的需求、目标和期望,以便更好地指导在临床诊疗中系统地引出患者的目标。

方法

一名学术图书馆员使用专门开发的算法在MEDLINE、PsychINFO和Cochrane图书馆中检索关于RA护理患者目标的文章。研究人员根据预先设定的纳入标准筛选检索结果,然后对纳入的文章进行审查,并采用归纳法对证据进行定性综合。

结果

在文献检索中总共检索到909篇标题,其中871篇在标题/摘要筛选后被排除。在其余的38篇中,22篇论文被纳入最终评价。研究人员在文献中确定了四个主要主题:(a)RA的身体体验;(b)实现正常状态和保持健康;(c)社会联系和支持;(d)人际和医疗保健系统互动。

结论

RA患者接受护理时的目标是多维度的,涵盖日常生活的多个方面。RA护理目标应由患者和提供者共同制定,特别关注患者的生活背景和优先事项。

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本文引用的文献

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Review: treat to target in rheumatoid arthritis: fact, fiction, or hypothesis?综述:类风湿关节炎的达标治疗:事实、虚构还是假设?
Arthritis Rheumatol. 2014 Apr;66(4):775-82. doi: 10.1002/art.38323.
2
The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.类风湿关节炎缓解期的患者视角:“你有局限性,但又恢复到了从前的你。”
Ann Rheum Dis. 2015 Jun;74(6):1004-10. doi: 10.1136/annrheumdis-2013-204798. Epub 2014 Feb 12.
3
Expectations of new treatment in rheumatoid arthritis: developing a patient-generated questionnaire.类风湿关节炎新疗法的期望:制定一份患者生成的问卷。
Health Expect. 2015 Oct;18(5):995-1008. doi: 10.1111/hex.12073. Epub 2013 Apr 25.
4
Comparison of expectations of physicians and patients with rheumatoid arthritis for rheumatology clinic visits: a pilot, multicenter, international study.类风湿关节炎医患双方对风湿科就诊的期望比较:一项试点、多中心、国际研究。
Int J Rheum Dis. 2012 Aug;15(4):380-9. doi: 10.1111/j.1756-185X.2012.01752.x.
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What RA patients expect of their treatment--discussion over the result of our survey.类风湿关节炎患者对治疗的期望——对我们调查结果的讨论。
Clin Rheumatol. 2012 Nov;31(11):1559-66. doi: 10.1007/s10067-012-2048-7. Epub 2012 Aug 2.
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Future expectations and worst-case future scenarios of patients with rheumatoid arthritis: a focus group study.类风湿关节炎患者的未来期望与最坏情况设想:一项焦点小组研究。
Musculoskeletal Care. 2012 Dec;10(4):240-7. doi: 10.1002/msc.1026. Epub 2012 Jun 20.
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It means everything: continuing normality of everyday life for people with rheumatoid arthritis in early remission.这意味着一切:处于早期缓解期的类风湿性关节炎患者能够继续正常的日常生活。
Musculoskeletal Care. 2012 Sep;10(3):162-70. doi: 10.1002/msc.1013. Epub 2012 May 24.
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Everyday life with rheumatoid arthritis and implications for patient education and clinical practice: a focus group study.类风湿关节炎患者的日常生活及其对患者教育和临床实践的影响:一项焦点小组研究
Musculoskeletal Care. 2012 Mar;10(1):29-38. doi: 10.1002/msc.224. Epub 2011 Dec 26.
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"Striving for a good life" - the management of rheumatoid arthritis as experienced by patients.“追求美好生活”——类风湿关节炎患者的管理体验
Open Nurs J. 2011;5:95-101. doi: 10.2174/1874434601105010095. Epub 2011 Nov 4.
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Negotiating targets with patients: choice of target in relation to occupational state.与患者协商目标:目标选择与职业状态的关系。
Rheumatology (Oxford). 2012 Feb;51(2):293-6. doi: 10.1093/rheumatology/ker237. Epub 2011 Aug 25.