Kurtin Sandra E, Paterson Phyllis, Wintrich Sophie, Iraca Tracey, Hassan Audrey Ann, Murray Deborah, Hogan Sue
University of Arizona Cancer Center, University of Tucson, Arizona, USA.
Clin J Oncol Nurs. 2012 Jun;16 Suppl:58-64. doi: 10.1188/12.CJON.S1.58-64.
Primarily a disease affecting older adults, myelodysplastic syndromes (MDS) are a class of incurable myeloid malignancies with variable clinical presentation, treatment recommendations, and prognoses. Although effective communication between healthcare professionals and patients and their caregivers is a significant part of optimizing clinical outcomes, studies have shown that all three frequently have an incomplete understanding of MDS, its therapeutic options, and the fact that MDS is a malignancy. In addition, the advanced age of the patient population, high frequency of comorbidities, and variability of disease outcomes based on risk status require consistent communication across a wide number and type of healthcare providers as well as an individualized approach to patient and caregiver education. This article discusses these challenges and provides a number of resources designed to help educate healthcare professionals, patients, and caregivers.
骨髓增生异常综合征（MDS）主要是一种影响老年人的疾病，是一类无法治愈的髓系恶性肿瘤，临床表现、治疗建议和预后各不相同。尽管医疗保健专业人员与患者及其护理人员之间的有效沟通是优化临床结果的重要组成部分，但研究表明，这三方常常对MDS、其治疗选择以及MDS是一种恶性肿瘤这一事实缺乏全面的了解。此外，患者群体的高龄、高合并症发生率以及基于风险状况的疾病结果差异，要求众多不同类型的医疗保健提供者进行持续沟通，并采取个性化方法对患者和护理人员进行教育。本文讨论了这些挑战，并提供了一些资源，旨在帮助教育医疗保健专业人员、患者和护理人员。
