Kurtin Sandra E, Demakos Erin P, Hayden Janet, Boglione Claudia
University of Arizona Cancer Center, USA.
Clin J Oncol Nurs. 2012 Jun;16 Suppl:23-35. doi: 10.1188/12.CJON.S1.23-35.
Myelodysplastic syndromes (MDS) are a heterogeneous group of myeloid malignancies with variability in clinical presentation, disease trajectory, treatment goals, and expected outcomes. The treatment of patients with MDS, therefore, often differs from patient to patient. Tools are needed to aid effective communication with patients, their caregivers, and their dedicated team of healthcare professionals. The use of methods often employed in clinical trials can help healthcare providers diagnose and classify risk status, track trends within patient responses, manage adverse events, set treatment expectations, and provide ongoing supportive care. This article discusses several tools and strategies available for the management of patients with MDS throughout the continuum of their disease.
骨髓增生异常综合征（MDS）是一组异质性的髓系恶性肿瘤，其临床表现、疾病进程、治疗目标和预期结果存在差异。因此，MDS患者的治疗往往因人而异。需要一些工具来帮助与患者、其护理人员以及专业医疗团队进行有效的沟通。采用临床试验中常用的方法有助于医疗服务提供者诊断和分类风险状态、跟踪患者反应趋势、管理不良事件、设定治疗预期以及提供持续的支持性护理。本文讨论了在MDS患者疾病全过程管理中可用的几种工具和策略。
