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八年里对一名重度残疾人的照料:对未来社区照料模式的启示

Care of a severely handicapped person over eight years: implications for the future pattern of community care.

作者信息

Ellis P F, Frank A O

机构信息

Northwick Park Hospital, Harrow, Middlesex.

出版信息

Br J Gen Pract. 1990 Sep;40(338):383-5.

PMID:2265006
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1371349/
Abstract

This case report describes eight years practical experience of community support for a quadriplegic woman with progressive multiple sclerosis. Key factors in avoiding institutional care were the close collaboration between general practitioner, hospital consultant and social services, and the recognition by the doctors that the social dimension was the dominant requirement for support. Other important points were the identification of one key worker from the many professionals involved, and the use of separate NHS and social service funds to employ care attendants. This funding allowed community nurses to utilize their professional skills while the care attendants solved the problems of dependency. The mechanisms of community support for the individual are discussed in the light of proposed changes in the organization of care for the disabled.

摘要

本病例报告描述了对一名患有进行性多发性硬化症的四肢瘫痪女性进行社区支持的八年实践经验。避免机构护理的关键因素包括全科医生、医院顾问和社会服务部门之间的密切合作,以及医生认识到社会层面是支持的主要需求。其他要点包括从众多参与的专业人员中确定一名关键工作者,以及使用国民保健制度(NHS)和社会服务部门的单独资金雇佣护理人员。这笔资金使社区护士能够发挥其专业技能,同时护理人员解决了依赖问题。根据对残疾人护理组织的提议变革,讨论了对个人的社区支持机制。

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Supporting individuals with disabling multiple sclerosis.为患有致残性多发性硬化症的个体提供支持。
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Who cares for young carers?谁来照顾年轻的照顾者?
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本文引用的文献

1
The dynamic approach to residential care of the disabled.为残疾人提供住宿护理的动态方法。
Br Med J (Clin Res Ed). 1984 May 5;288(6427):1323-4. doi: 10.1136/bmj.288.6427.1323.
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The general practitioner and the disabled.全科医生与残疾人
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Social work and primary care--the need for increased collaboration: discussion paper.社会工作与初级保健——加强合作的必要性:讨论文件
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Prevalence of disability observed in an Oxfordshire practice.牛津郡一家医疗机构中观察到的残疾患病率。
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Care of physically handicapped young adults.身体残疾青年的护理。
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6
Community care. II: Possible solutions.社区护理。二:可能的解决办法。
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7
Community care. I: Problems.社区护理。一:问题。
Br Med J (Clin Res Ed). 1987 Dec 12;295(6612):1505-8. doi: 10.1136/bmj.295.6612.1505-a.
8
ABC of spinal cord injury. Social needs of the patient and his family.脊髓损伤基础。患者及其家庭的社会需求。
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General practitioners' responsibilities.全科医生的职责。
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Health care of physically handicapped young adults.身体残疾的年轻人的医疗保健。
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