Bax M C, Smyth D P, Thomas A P
Department of Child Health, Charing Cross and Westminster Medical School, London.
Br Med J (Clin Res Ed). 1988 Apr 23;296(6630):1153-5. doi: 10.1136/bmj.296.6630.1153.
Little is known about the health needs of physically handicapped young adults after they become too old for the paediatric service. To assess these needs 104 young people with physical handicaps were given a medical examination and interviewed. They had diverse physical handicaps, many of which were rare (41 subjects); 45 had cerebral palsy and 18 spina bifida. Mental handicap (42 subjects) and a need for special education (28) were also diagnosed. The state of health of all subjects was generally poor. Sixty one subjects had contractures of the lower joints and almost a quarter contractures of the upper joints; 26 had deformed feet. Consequently, many subjects (41) could not walk; only 13 could walk without difficulty. Urinary and bowel incontinence were prevalent (58 and 55 subjects, respectively) and with contractures and pressure sores resulted in skin problems (35 subjects). Kyphoscoliosis was present in 30 subjects, particularly those with spina bifida (10 out of 18), of whom one third had respiratory problems and almost half cardiac problems. Thirty one subjects had epilepsy. Many subjects (49) had difficulty communicating or some visual defect (27). Although over half the subjects had health problems that were severe enough to warrant intervention, less than a third were receiving any form of regular hospital care; regular contact with physiotherapists, speech therapists, and dentists was also poor. Moreover, the original diagnoses and prescriptions had not been reviewed regularly. Teams for handicapped adults should be set up in all district health authorities to provide a clinical and coordination service for all adults with physical and mental handicaps.
对于身体有残疾的年轻人,当其年龄超过儿科服务范围后,他们的健康需求鲜为人知。为评估这些需求,对104名身体有残疾的年轻人进行了医学检查并开展了访谈。他们有各种各样的身体残疾,其中许多较为罕见(41名受试者);45人患有脑瘫,18人患有脊柱裂。还诊断出有智力残疾(42名受试者)和需要特殊教育(28名)的情况。所有受试者的健康状况总体较差。61名受试者有下肢关节挛缩,近四分之一有上肢关节挛缩;26人脚部畸形。因此,许多受试者(41名)无法行走;只有13人能够轻松行走。大小便失禁很普遍(分别有58名和55名受试者),加上挛缩和压疮导致了皮肤问题(35名受试者)。30名受试者有脊柱侧弯,特别是那些患有脊柱裂的(18人中有10人),其中三分之一有呼吸问题,近一半有心脏问题。31名受试者患有癫痫。许多受试者(49名)存在沟通困难或有某种视力缺陷(27名)。虽然超过一半的受试者有严重到需要干预的健康问题,但不到三分之一的人正在接受任何形式的常规医院护理;与物理治疗师、言语治疗师和牙医的定期联系也很少。此外,最初的诊断和处方没有得到定期复查。所有地区卫生当局都应设立针对残疾成年人的团队,为所有有身体和智力残疾的成年人提供临床和协调服务。