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一项为期 12 周的团体运动课程对中度多发性硬化症患者影响的定性研究。

A qualitative exploration of the impact of a 12-week group exercise class for those moderately affected with multiple sclerosis.

机构信息

College of Medical, Veterinary and Life Sciences, University of Glasgow, Glasgow, Scotland, UK.

出版信息

Disabil Rehabil. 2013 Jan;35(1):81-8. doi: 10.3109/09638288.2012.688922. Epub 2012 Jun 2.

Abstract

PURPOSE

The evidence base to support therapeutic exercise for people with multiple sclerosis (MS) is improving; however few studies have considered the patients' perspective. This study aimed to explore the experiences and views of people moderately affected with MS following participation in a 12-week exercise programme.

METHOD

Twenty people with MS participated in a group exercise class. Subsequently, four men and ten women took part in one of two focus groups. Semi-structured questions were used to elicit participants' views on the exercise class, outcomes from exercise and the exercise class and any perceived facilitators or barriers to exercise. Data were analysed using a general inductive method.

RESULTS

Benefits to participating in exercise for those with MS included social support and symptom improvement. Psychosocial factors, symptoms and lack of service emerged as exercise barriers. Three inter-related themes emerged; (1) The exercise class developed as a bridge to allow participants to realise, (2) the benefits of the class, helping them to overcome and (3) barriers to exercise.

CONCLUSION

Taking part in an exercise class was a positive experience for people with MS. Healthcare professionals should work with exercise professionals to provide feasible exercise opportunities to help those with MS benefit from therapeutic exercise.

摘要

目的

支持多发性硬化症(MS)患者进行治疗性运动的证据基础正在不断完善;然而,很少有研究考虑到患者的观点。本研究旨在探讨中度 MS 患者在参加为期 12 周的运动计划后的体验和看法。

方法

20 名 MS 患者参加了团体运动课程。随后,4 名男性和 10 名女性参加了两个焦点小组中的一个。采用半结构化问题来引出参与者对运动课程、运动的结果以及对运动的任何感知促进因素或障碍的看法。使用一般归纳方法对数据进行分析。

结果

参加 MS 运动的好处包括社会支持和症状改善。心理社会因素、症状和服务不足成为运动障碍。出现了三个相互关联的主题:(1)运动课程的发展成为一个桥梁,让参与者认识到(2)课程的好处,帮助他们克服(3)运动障碍。

结论

参加运动课程对 MS 患者来说是一种积极的体验。医疗保健专业人员应与运动专业人员合作,提供可行的运动机会,帮助 MS 患者从治疗性运动中受益。

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